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User Involvement—The Patient and Carer as Team Members?

David Oliviere

in Teamwork in Palliative Care: Fulfilling or Frustrating?

Published in print:
2006
Published Online:
November 2011
ISBN:
9780198567745
eISBN:
9780191730436
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198567745.003.0004
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter examines how user involvement or the involvement of the patient in the palliative care team can be achieved, sustained, and enhanced. It explores the ideological basis of user ... More


Patient Participation in Palliative Care: A voice for the voiceless

Barbara Monroe and David Oliviere (eds)

Published in print:
2003
Published Online:
November 2011
ISBN:
9780198515814
eISBN:
9780191730498
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198515814.001.0001
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core ... More


Developments in user organizations

Jane Bradburn

in Patient Participation in Palliative Care: A voice for the voiceless

Published in print:
2003
Published Online:
November 2011
ISBN:
9780198515814
eISBN:
9780191730498
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198515814.003.0003
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter discusses the growth of the user movement and the contribution that this has made to giving a ‘voice to the voiceless’. It explores the way cancer user organizations in particular have ... More


User involvement

Kathy Boxall, Lorna Warren, and Ruby C.M. Chau

in Policy reconsidered: Meanings, politics and practices

Published in print:
2007
Published Online:
March 2012
ISBN:
9781861349132
eISBN:
9781447302995
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861349132.003.0009
Subject:
Social Work, Social Policy

The public service and research arenas are currently experiencing strong pressures to ‘involve’ service users in social care research, policy, and practice. These pressures came from the policymakers ... More


Health inequalities and user involvement

Tritter Jonathan and Lester Helen

in Challenging health inequalities: From Acheson to choosing health

Published in print:
2007
Published Online:
March 2012
ISBN:
9781861348999
eISBN:
9781447301646
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861348999.003.0010
Subject:
Public Health and Epidemiology, Public Health

This chapter examines the theory and practice of user involvement and evaluates its impact on health inequalities in Great Britain. It describes different types of user involvement and highlights the ... More


Patient and carer narratives and stories

Phil Cotterell, Helen Findlay, and Ann Macfarlane MBE

in Narrative and Stories in Health Care: Illness, dying and bereavement

Published in print:
2009
Published Online:
November 2011
ISBN:
9780199546695
eISBN:
9780191730214
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199546695.003.0009
Subject:
Palliative Care, Palliative Medicine Research, Patient Care and End-of-Life Decision Making

This chapter discusses narrative and stories in the broader context of ‘user involvement’ in palliative care. The main focus of this chapter is the role and use of patient and carer stories, and two ... More


The changing National Health Service, user involvement and palliative care

Neil Small

in Patient Participation in Palliative Care: A voice for the voiceless

Published in print:
2003
Published Online:
November 2011
ISBN:
9780198515814
eISBN:
9780191730498
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198515814.003.0002
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter discusses what has changed and what has remained the same in the National Health Service (NHS). It enumerates the crucial developments that have occurred in the NHS since 1997 and ... More


User involvement in personal social services

Ilse Julkunen and Matti Heikkilä

in Making it personal: Individualising activation services in the EU

Published in print:
2007
Published Online:
March 2012
ISBN:
9781861347978
eISBN:
9781447302735
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861347978.003.0005
Subject:
Sociology, Comparative and Historical Sociology

This chapter reviews user involvement in personal social services. It is argued that several ‘degrees’ or ‘levels’ of user involvement should be distinguished. This can range from the user as an ... More


Service users and ethics

Martin Stevens and Jill Manthorpe

in Ethics: Contemporary challenges in health and social care

Published in print:
2007
Published Online:
March 2012
ISBN:
9781861347558
eISBN:
9781447302216
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861347558.003.0008
Subject:
Social Work, Health and Mental Health

The ethical case for involving service users in service planning and delivery, and in research and evaluation, has been made on several grounds. One important set of reasons is that such involvement ... More


‘Still out there?’ Is the service user voice becoming lost as user involvement moves into the mental health research mainstream?

Kati Turner and Steve Gillard

in Critical Perspectives on User Involvement

Published in print:
2011
Published Online:
May 2012
ISBN:
9781847427519
eISBN:
9781447305590
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781847427519.003.0018
Subject:
Social Work, Research and Evaluation

Service user involvement in mental health research has moved on from the pioneering research that characterized the turn of the millennium: the surveys of service provision environments supported by ... More


Software Development Practices

Robin Fincham, James Fleck, Rob Procter, Harry Scarbrough, Margaret Tierney, and Robin Williams

in Expertise and Innovation: Information Technology Strategies in the Financial Services Sector

Published in print:
1995
Published Online:
October 2011
ISBN:
9780198289043
eISBN:
9780191684678
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198289043.003.0008
Subject:
Business and Management, Information Technology, Knowledge Management

This chapter explores the main process of information technology (IT) innovation, namely, the area of knowledge that has become recognized as software engineering. Throughout its history, software ... More


Partnership between service users and statutory social services

Balloch Michael Turner and Susan

in Partnership working: Policy and practice

Published in print:
2001
Published Online:
March 2012
ISBN:
9781861342201
eISBN:
9781447302919
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861342201.003.0009
Subject:
Public Health and Epidemiology, Public Health

This chapter considers strategies to develop partnerships with users of social services. It describes some strategies being developed to achieve user involvement including the funding of service ... More


Service users and social policy: developing different discussions, challenging dominant discourses

Beresford Peter

in Social policy review 22: Analysis and debate in social policy, 2010

Published in print:
2010
Published Online:
March 2012
ISBN:
9781847427113
eISBN:
9781447303497
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781847427113.003.0011
Subject:
Sociology, Social Research and Statistics

This chapter argues that the tensions inherent in the competing value systems around participation and involvement mean that there are risks for service users and their movements attached to ... More


Education in palliative care

Emma Davie and Bill Noble

in Patient Participation in Palliative Care: A voice for the voiceless

Published in print:
2003
Published Online:
November 2011
ISBN:
9780198515814
eISBN:
9780191730498
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198515814.003.0005
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter discusses education in palliative care and the need to include the patients. It looks at the user involvement in interprofessional learning and in a communication skills course, as well ... More


Choice, control and user influence in health and social care

Gabrielle Mastin

in Social policies and social control: New perspectives on the ‘not-so-big society’

Published in print:
2014
Published Online:
January 2015
ISBN:
9781447310747
eISBN:
9781447310778
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447310747.003.0008
Subject:
Political Science, Public Policy

The concept of user involvement has been an important area of interest for politicians and decision makers over several decades. Although the concept lacks an agreed and universal definition, the ... More


Health care governance, user involvement and medical regulation in Europe

Mike Dent

in Professional Health Regulation in the Public Interest: International Perspectives

Published in print:
2018
Published Online:
January 2019
ISBN:
9781447332268
eISBN:
9781447332282
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447332268.003.0002
Subject:
Public Health and Epidemiology, Public Health

This chapter reviews recent developments in user involvement practices across a range of European health care systems in terms of their implications for the medical profession and regulation of its ... More


Should we? Could we? Measuring involvement

Rachel Purtell, Wendy Rickard, and Katrina Wyatt

in Critical Perspectives on User Involvement

Published in print:
2011
Published Online:
May 2012
ISBN:
9781847427519
eISBN:
9781447305590
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781847427519.003.0020
Subject:
Social Work, Research and Evaluation

This chapter discusses whether measuring the impact, influence or outcome of involving people in services and research is really possible or even desirable. The history of involvement is not based on ... More


Independent futures: Creating user-led disability services in a disabling society

Colin Barnes

Published in print:
2006
Published Online:
March 2012
ISBN:
9781861347183
eISBN:
9781447302599
Item type:
book
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861347183.001.0001
Subject:
Social Work, Health and Mental Health

The number of disability related support services controlled and run by disabled people themselves has increased significantly in the UK and internationally over the past forty years. As a result, ... More


Participation and social justice

Barnes Marian, Gell Colin, and Thomas Pat

in Social policy review 22: Analysis and debate in social policy, 2010

Published in print:
2010
Published Online:
March 2012
ISBN:
9781847427113
eISBN:
9781447303497
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781847427113.003.0012
Subject:
Sociology, Social Research and Statistics

This chapter offers some conceptual frameworks that could contribute to facilitating the increased reflexivity on the part of service users and their movements advocated by Beresford. It considers ... More


The policy context: user involvement – a case study in health and community settings

Lesley Greenaway and Bridget Roberts

in Exploring the dynamics of personal, professional and interprofessional ethics

Published in print:
2014
Published Online:
September 2014
ISBN:
9781447308997
eISBN:
9781447311447
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447308997.003.0004
Subject:
Social Work, Research and Evaluation

Professionals working across the caring professions are subject to new policy directions where government places communities at the heart of decision making, and where there is an expectation of ... More


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