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Introduction

Robert Rosenthal and Ralph L. Rosnow

in Artifacts in Behavioral Research: Robert Rosenthal and Ralph L. Rosnow's Classic Books

Published in print:
2009
Published Online:
September 2009
ISBN:
9780195385540
eISBN:
9780199869824
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195385540.003.0033
Subject:
Psychology, Social Psychology

This short chapter defines volunteer bias and provides empirical evidence of the reliability of volunteering for research participation.


Toward Human Research Protection That Is Evidence Based and Participant Centered

Michael McDonald, Susan Cox, and Anne Townsend

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0011
Subject:
Biology, Bioethics

This chapter addresses a fundamental question of whether current research protection systems based on compliance with rules actually do what they purport to do – protect participants without ... More


Differing Understandings of Informed Consent Held by Research Institutions, People with Intellectual Disability, and Guardians: Implications for Inclusive, Ethical Research

Britteny M. Howell and Karrie A. Shogren

in Research Involving Participants with Cognitive Disability and Difference: Ethics, Autonomy, Inclusion, and Innovation

Published in print:
2019
Published Online:
October 2019
ISBN:
9780198824343
eISBN:
9780191863165
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198824343.003.0003
Subject:
Neuroscience, Behavioral Neuroscience, Techniques

Increasing participation of people with intellectual disability (ID) is necessary for inclusive, ethical research that reduces persistent disparities in representation. However, many adults with ID ... More


Dealing with Uncertainty: Payment Policy for the Generation of Evidence as Part of Clinical Practice

Carol M. Ashton and Nelda P. Wray

in Comparative Effectiveness Research: Evidence, Medicine, and Policy

Published in print:
2013
Published Online:
September 2013
ISBN:
9780199968565
eISBN:
9780199346080
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199968565.003.0012
Subject:
Public Health and Epidemiology, Public Health

Linking practice with evidence through payment policy will increase the value we get for the dollars we expend on medical care. But vast uncertainties exist in medicine. How should we proceed when ... More


Children and Young People’s Participation in Research

Nigel Thomas

in International Perspectives and Empirical Findings on Child Participation: From Social Exclusion to Child-Inclusive Policies

Published in print:
2015
Published Online:
August 2016
ISBN:
9780199366989
eISBN:
9780190625238
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199366989.003.0005
Subject:
Social Work, Children and Families, Social Policy

Children and young people’s participation in research can mean anything from taking part in adults’ research projects, to working in research partnerships with adults, to conducting their own ... More


Connecting classes and communities with conservation

Susan K. Jacobson, Mallory D. McDuff, and Martha C. Monroe

in Conservation Education and Outreach Techniques

Published in print:
2015
Published Online:
October 2015
ISBN:
9780198716686
eISBN:
9780191797477
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198716686.003.0008
Subject:
Biology, Biodiversity / Conservation Biology

Effective conservation aims to integrate, rather than compete with, the needs of the human and biological communities that share landscapes. This chapter focuses on techniques to connect classrooms ... More


Researching end of life in old age: ethical challenges

Ailsa Cameron, Liz Lloyd, Naomi Kent, and Pat Anderson

in Researchers and their 'subjects': Ethics, power, knowledge and consent

Published in print:
2004
Published Online:
March 2012
ISBN:
9781861345141
eISBN:
9781447303220
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861345141.003.0007
Subject:
Sociology, Social Research and Statistics

One of the ethical dilemmas facing researchers and social researchers is the most appropriate way of researching the relationship between old age and death. This chapter reviews the ethical issues ... More


Evaluating the therapeutic misconception

Steven Joffe

in The Ethical Challenges of Human Research: Selected Essays

Published in print:
2012
Published Online:
May 2015
ISBN:
9780199896202
eISBN:
9780190267681
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:osobl/9780199896202.003.0018
Subject:
Philosophy, Moral Philosophy

This chapter focuses on the notion of therapeutic misconception and its implications for research ethics. Therapeutic misconception was coined by Paul Appelbaum, Loren Roth, and Charles Lidz (1982) ... More


Vulnerability, Empowerment, and Dissent: The Importance of Saying No: Commentary on All Chapters

M. Ariel Cascio

in Research Involving Participants with Cognitive Disability and Difference: Ethics, Autonomy, Inclusion, and Innovation

Published in print:
2019
Published Online:
October 2019
ISBN:
9780198824343
eISBN:
9780191863165
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198824343.003.0030
Subject:
Neuroscience, Behavioral Neuroscience, Techniques

This is a commentary on Chapters 1–17. It focuses on the vulnerability of potential research participants to undue influence or coercion, empowerment to make decisions about taking part in research, ... More


A Tale of Three Cultures

Jill A. Fisher

in Adverse Events: Race, Inequality, and the Testing of New Pharmaceuticals

Published in print:
2020
Published Online:
January 2021
ISBN:
9781479877997
eISBN:
9781479861439
Item type:
chapter
Publisher:
NYU Press
DOI:
10.18574/nyu/9781479877997.003.0004
Subject:
Anthropology, Medical Anthropology

Despite similar financial goals among healthy volunteers, there are regional differences in the culture of Phase I participation. Chapter 3 focuses on this theme to further unpack variations in how ... More


Repurposing Ethnography to Assess Consent Capacity: Commentary on Mehmood (Chapter 14)

Megan S. Wright

in Research Involving Participants with Cognitive Disability and Difference: Ethics, Autonomy, Inclusion, and Innovation

Published in print:
2019
Published Online:
October 2019
ISBN:
9780198824343
eISBN:
9780191863165
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198824343.003.0024
Subject:
Neuroscience, Behavioral Neuroscience, Techniques

This chapter comments on the use of ethnographic methods to assess prospective research participants’ capacity to consent to research. While repurposing ethnography provides a valuable tool to assess ... More


Adverse Events: Race, Inequality, and the Testing of New Pharmaceuticals

Jill A. Fisher

Published in print:
2020
Published Online:
January 2021
ISBN:
9781479877997
eISBN:
9781479861439
Item type:
book
Publisher:
NYU Press
DOI:
10.18574/nyu/9781479877997.001.0001
Subject:
Anthropology, Medical Anthropology

Phase I clinical trials test the safety and tolerability of new pharmaceuticals and typically pay healthy people to enroll as research participants. In addition to being exposed to the risks of ... More


What about the Customer? The Patient’s Dilemma

Michael Tansey

in Intelligent Drug Development: Trials and Errors in Clinical Research

Published in print:
2014
Published Online:
November 2020
ISBN:
9780199974580
eISBN:
9780197563335
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780199974580.003.0016
Subject:
Chemistry, Medicinal Chemistry

Apparently no one was listening to Sir William. In a study carried out 80 years after Osler’s exhortation, physicians interrupted patients, on average, ... More


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