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Toward Human Research Protection That Is Evidence Based and Participant Centered

Michael McDonald, Susan Cox, and Anne Townsend

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0011
Subject:
Biology, Bioethics

This chapter addresses a fundamental question of whether current research protection systems based on compliance with rules actually do what they purport to do – protect participants without ... More


Service users being used: thoughts to the research community

Michaela Booth and Paula Harriott

in Critical Reflections on Women, Family, Crime and Justice

Published in print:
2021
Published Online:
January 2022
ISBN:
9781447358688
eISBN:
9781447358718
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447358688.003.0010
Subject:
Sociology, Law, Crime and Deviance

This chapter highlights the pains of women's imprisonment, looking at the contemporaneous and longitudinal impact on their health and wellbeing, their family life, their mothering identity, stigma, ... More


Participant-led video diaries

Rebecca Whiting, Helen Roby, Gillian Symon, and Petros Chamakiotis

in Unconventional Methodology in Organization and Management Research

Published in print:
2018
Published Online:
April 2018
ISBN:
9780198796978
eISBN:
9780191838446
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198796978.003.0010
Subject:
Business and Management, Organization Studies, Knowledge Management

Rebecca Whiting, Helen Roby, Gillian Symon, and Petros Chamakiotis develop an unconventional research design using video methods, asking participants to produce their own video diaries, a process ... More


The Politics and Ethics of Fieldwork in Post-conflict Environments: The Dilemmas of a Vocational Approach

John Heathershaw and Parviz Mullojonov

in Doing Fieldwork in Areas of International Intervention: A Guide to Research in Violent and Closed Contexts

Published in print:
2020
Published Online:
January 2021
ISBN:
9781529206883
eISBN:
9781529206906
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781529206883.003.0007
Subject:
Sociology, Social Research and Statistics

This chapter focuses on the field research of John Heathershaw and Parviz Mullojonov. It illustrates the slippery slope that research in violent and closed contexts can be despite complying with the ... More


Digital embodiments: a two-day workshop with migrant women

Elena Vacchelli

in Embodied Research in Migration Studies: Using Creative and Participatory Approaches

Published in print:
2018
Published Online:
January 2019
ISBN:
9781447339069
eISBN:
9781447339106
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447339069.003.0005
Subject:
Sociology, Migration Studies (including Refugee Studies)

This chapter draws on Digital Storytelling (DS), a process that allows research participants to tell their stories in their own words through a guided creative workshop that includes the use of ... More


Subjects, Participants, and Partners: What Are the Implications for Research as the Role of Informed Consent Evolves?

Alexander Morgan Capron

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0013
Subject:
Biology, Bioethics

Informed consent is usually thought of as the ethical cornerstone of research with human beings yet over the past thirty years a largegap has opened between informed consent as an object of ... More


Justice in Research on Human Subjects

David Buchanan and Franklin G. Miller

in Medicine and Social Justice: Essays on the Distribution of Health Care

Published in print:
2012
Published Online:
May 2015
ISBN:
9780199744206
eISBN:
9780190267551
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:osobl/9780199744206.003.0037
Subject:
Philosophy, Moral Philosophy

This chapter considers justice in research on human subjects. The most basic issue in regard to the advancement of biomedical science and the medical and social uses of new knowledge is how human ... More


On time

Naomi Woodspring

in Baby Boomers: Time and Ageing Bodies

Published in print:
2016
Published Online:
January 2017
ISBN:
9781447318774
eISBN:
9781447318781
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447318774.003.0004
Subject:
Education, Educational Policy and Politics

‘On time,’ shifts to the voices of the research participants and investigates the meaning of time as defined by them. From this vantage point, research participants discuss varied aspects of time. ... More


subject participation in research: frankenstein

edmund g. howe

in The Picture of Health: Medical Ethics and the Movies

Published in print:
2011
Published Online:
May 2015
ISBN:
9780199735365
eISBN:
9780190267520
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:osobl/9780199735365.003.0049
Subject:
Philosophy, Moral Philosophy

This chapter uses the film Frankenstein (1931) to set the stage for a discussion of research in general, and more particularly, how researchers should treat research participants. The key ethical ... More


the ethics of international research: the constant gardener

annette rid and seema k. shah

in The Picture of Health: Medical Ethics and the Movies

Published in print:
2011
Published Online:
May 2015
ISBN:
9780199735365
eISBN:
9780190267520
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:osobl/9780199735365.003.0051
Subject:
Philosophy, Moral Philosophy

This chapter uses the film The Constant Gardener (2005) to set the stage for a discussion of research ethics in developing countries. The film tells the story of Justin Quayle (Ralph Fiennes), whose ... More


Overview: What We Did and What We Found

Reid Hastie

in Punitive Damages: How Juries Decide

Published in print:
2002
Published Online:
March 2013
ISBN:
9780226780146
eISBN:
9780226780160
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226780160.003.0002
Subject:
Law, Company and Commercial Law

This book presents experiments that are simulations of the jury decision task. The simulation research strategy—which is used routinely in engineering, medical, and behavioral research—involves ... More


The fair transaction model of informed consent: An alternative to autonomous authorization

Alan Wertheimer

in The Ethical Challenges of Human Research: Selected Essays

Published in print:
2012
Published Online:
May 2015
ISBN:
9780199896202
eISBN:
9780190267681
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:osobl/9780199896202.003.0022
Subject:
Philosophy, Moral Philosophy

This chapter examines the fair transaction model of informed consent as an alternative to autonomous authorization by research participants. Prevailing ethical thinking about informed consent to ... More


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