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Genomics for the 98 Percent?

Jenny Reardon

in The Postgenomic Condition: Ethics, Justice, and Knowledge after the Genome

Published in print:
2017
Published Online:
September 2018
ISBN:
9780226344553
eISBN:
9780226345192
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226345192.003.0006
Subject:
Sociology, Health, Illness, and Medicine

The Human Genome Project’s open-source ethos sat uneasily next to historic commitments to biomedical privacy rights. Google-backed personal genomics (PG) company 23andMe argued that citizens should ... More


Exploring Personal Genomics

Joel T. Dudley and Konrad J. Karczewski

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.001.0001
Subject:
Biology, Evolutionary Biology / Genetics

This book provides a novel, inquiry-based approach to the understanding and interpretation of the practical, medical, physiological, and societal aspects of personal genomic information. The material ... More


Visualizing personal genomics

Joel T. Dudley

in Exploring Personal Genomics

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.003.0004
Subject:
Biology, Evolutionary Biology / Genetics

This chapter discusses several fundamental types and methods of visualizing personal genomics. It reviews some of the existing and relevant visualization tools and techniques that represent initial ... More


Personal genomics and the environment

Joel T. Dudley and Konrad J. Karczewski

in Exploring Personal Genomics

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.003.0008
Subject:
Biology, Evolutionary Biology / Genetics

This chapter talks about how in the event of understanding and discussing how personal genetic traits relate to phenotypic traits, then it is necessary to also explore and understand the consequences ... More


Practical and ethical considerations in personal genomics

Joel T. Dudley

in Exploring Personal Genomics

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.003.0002
Subject:
Biology, Evolutionary Biology / Genetics

This chapter discusses the reasons and considerations that are often taken into account whenever someone wishes to obtain their personal genetic information. It stresses the importance of being ... More


Genetic trait associations

Joel T. Dudley and Konrad J. Karczewski

in Exploring Personal Genomics

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.003.0006
Subject:
Biology, Evolutionary Biology / Genetics

This chapter talks about the primary application of personal genomics: mainly to understand and evaluate the genetic components of personal traits, including one's risk to acquire certain various ... More


Race, Difference, and Genes

Myles W. Jackson

in The Genealogy of a Gene: Patents, HIV/AIDS, and Race

Published in print:
2015
Published Online:
September 2015
ISBN:
9780262028660
eISBN:
9780262327190
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262028660.003.0008
Subject:
History, History of Science, Technology, and Medicine

This chapter situates the CCR5 gene, specifically the Δ‎32 allele, in the contexts of four distinct yet related enterprises- race and genomics, Big Pharma, personalized medicine, and personal ... More


Pharmacogenomics

Joel T. Dudley and Konrad J. Karczewski

in Exploring Personal Genomics

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.003.0007
Subject:
Biology, Evolutionary Biology / Genetics

This chapter defines and explores what is called pharmacogenomics. It's broad definition states that it is the study of the relationship between variation in drug effects (pharmacology) and genetic ... More


The Genealogy of a Gene: Patents, HIV/AIDS, and Race

Myles W. Jackson

Published in print:
2015
Published Online:
September 2015
ISBN:
9780262028660
eISBN:
9780262327190
Item type:
book
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262028660.001.0001
Subject:
History, History of Science, Technology, and Medicine

This book uses the story of the CCR5 gene to investigate the interrelationships among science, technology, and society. Mapping the varied ‘genealogy’ of CCR5- intellectual property, natural ... More


Ancestry and genealogy

Joel T. Dudley

in Exploring Personal Genomics

Published in print:
2013
Published Online:
December 2013
ISBN:
9780199644483
eISBN:
9780191774577
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199644483.003.0005
Subject:
Biology, Evolutionary Biology / Genetics

This chapter explores the genetics of human ancestry. Personal genomics's most intriguing and introspective aspect is the fact that each individual's genome contains the genetic footprints of ... More


Conclusion: The End of Bioinformatics

Hallam Stevens

in Life Out of Sequence: A Data-Driven History of Bioinformatics

Published in print:
2013
Published Online:
May 2014
ISBN:
9780226080178
eISBN:
9780226080345
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226080345.003.0008
Subject:
History, History of Science, Technology, and Medicine

Where is sequence likely to take biology in the near future? Sequence is not going away: next-generation sequencing machines are making more and more sequence and more and more data an increasingly ... More


Quantified: Biosensing Technologies in Everyday Life

Dawn Nafus (ed.)

Published in print:
2016
Published Online:
January 2017
ISBN:
9780262034173
eISBN:
9780262334549
Item type:
book
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262034173.001.0001
Subject:
Information Science, Communications

Today anyone can purchase technology that can track, quantify, and measure the body and its environment. Wearable or portable sensors detect heart rates, glucose levels, steps taken, water quality, ... More


Epilogue: The End of an Error?

Myles W. Jackson

in The Genealogy of a Gene: Patents, HIV/AIDS, and Race

Published in print:
2015
Published Online:
September 2015
ISBN:
9780262028660
eISBN:
9780262327190
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262028660.003.0009
Subject:
History, History of Science, Technology, and Medicine

This final chapter brings us up to date with the current state of affairs in gene patenting. It discusses the recent US Supreme Court’s decision on the breast cancer patents held by Myriad Genetics. ... More


The Age of Personalized Medicine—From Patients to Consumers: The Digital Environment, Clickwrap Contracts, and Implications for Autonomy

Andelka M Phillips

in Philosophical Foundations of Medical Law

Published in print:
2019
Published Online:
January 2020
ISBN:
9780198796558
eISBN:
9780191837814
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198796558.003.0023
Subject:
Law, Philosophy of Law, Medical Law

How many online contracts have you entered into this year and how many of those did you actually read? This chapter explores the impact that the designed environment of websites and electronic ... More


Introduction

Andelka M Phillips, Thana C de Campos, and Jonathan Herring

in Philosophical Foundations of Medical Law

Published in print:
2019
Published Online:
January 2020
ISBN:
9780198796558
eISBN:
9780191837814
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198796558.003.0001
Subject:
Law, Philosophy of Law, Medical Law

This introductory chapter argues that the advent of personalized medicine, precision medicine, and new consumer-focused services—such as personal genomics—is changing the nature of the traditional ... More


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