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Research in Pediatric Palliative Care

Russell K. Portenoy and Eduardo Bruera

in Issues in Palliative Care Research

Published in print:
2003
Published Online:
November 2011
ISBN:
9780195130652
eISBN:
9780199999842
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195130652.003.0023
Subject:
Palliative Care, Palliative Medicine Research, Patient Care and End-of-Life Decision Making

The World Health Organization (WHO) defines palliative care as the active total care of patients whose disease is not responsive to curative treatment. Control of pain, other symptoms, and ... More


Introduction

Ann Armstrong-Dailey and Sarah Zarbock (eds)

in Hospice Care for Children

Published in print:
2008
Published Online:
November 2011
ISBN:
9780195340709
eISBN:
9780199999927
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195340709.003.0001
Subject:
Palliative Care, Paediatric Palliative Medicine, Pain Management and Palliative Pharmacology

This introductory chapter explains the coverage of this book, which is about pediatric hospice care. The book provides specific information about providing for terminally ill children, including ... More


Pediatric End-of-Life Care

David J. Bearison

in When Treatment Fails: How medicine cares for dying children

Published in print:
2006
Published Online:
November 2011
ISBN:
9780195156126
eISBN:
9780199999873
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195156126.003.0001
Subject:
Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making

This chapter introduces the main topic of the book: pediatric end-of-life care. It discusses the concerns with talking to children about dying, before looking at what it is like for the parents and ... More


Epilogue

Linda Granowetter

in The Edge of Medicine: Stories of Dying Children and Their Parents

Published in print:
2012
Published Online:
September 2012
ISBN:
9780195389272
eISBN:
9780199979219
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195389272.003.0007
Subject:
Palliative Care, Paediatric Palliative Medicine

The epilogue, written by the Chief of the Division of Pediatric Oncology/Hematology at a major tertiary care teaching hospital, reflects her particular and informed perspective on these narratives ... More


Guidelines Concerning Neonates, Infants, Children, and Adolescents

Nancy Berlinger, Bruce Jennings, and Susan M. Wolf

in The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life: Revised and Expanded Second Edition

Published in print:
2013
Published Online:
September 2013
ISBN:
9780199974566
eISBN:
9780199333332
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199974566.003.0008
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making

The ethical and legal framework that informs these Guidelines also supports treatment decision-making involving minors. This section presents the additional special considerations that arise when ... More


A House Called Helen: The Development of Hospice Care for Children

Jacqueline Worswick

Published in print:
2000
Published Online:
November 2011
ISBN:
9780192632357
eISBN:
9780191730122
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192632357.001.0001
Subject:
Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making

The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established, and the growth in the number of children's hospices has seen ... More


Paediatric problems

Andrew Davies and Ilora Finlay

in Oral Care in Advanced Disease

Published in print:
2005
Published Online:
November 2011
ISBN:
9780192632432
eISBN:
9780191730375
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192632432.003.0018
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology

Although there are several common features, there are also many major differences between adult and paediatric palliative care. Children in palliative care will have non-malignant disease and will ... More


Staff Reacting

David J. Bearison

in When Treatment Fails: How medicine cares for dying children

Published in print:
2006
Published Online:
November 2011
ISBN:
9780195156126
eISBN:
9780199999873
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195156126.003.0006
Subject:
Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making

This chapter discusses how the staff reacts to participating in pediatric end-of-life care. This raises several issues across a continuum of professional and personal concerns. Four themes arise from ... More


Resilience and paediatric palliative care

Joan Marston

in Resilience in Palliative Care: Achievement in adversity

Published in print:
2007
Published Online:
November 2011
ISBN:
9780199206414
eISBN:
9780191730320
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199206414.003.0007
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter examines resilience in the paediatric palliative care setting. Children facing life-threatening illness, whether in themselves or a close family member, and children experiencing loss, ... More


When palliative care involves children: critical conversations and pain and symptom highlights

Gerri Frager and Kim Blake

in Palliative Medicine: A case-based manual

Published in print:
2012
Published Online:
May 2012
ISBN:
9780199694143
eISBN:
9780191739255
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199694143.003.0113
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making

This chapter examines various case studies to show the desired skills, attitudes, and knowledge needed for palliative care involving children, whether they are being cared for as patients or as ... More


Breathlessness in children

Stephen Liben

in Dyspnoea in Advanced Disease: A guide to clinical management

Published in print:
2005
Published Online:
November 2011
ISBN:
9780198530039
eISBN:
9780191730450
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198530039.003.0007
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology

This chapter discusses breathlessness in children in paediatric palliative care. It discusses the most common signs of breathlessness in children, which may or may not be associated with shortness of ... More


New models, new care

Michael Wright, David Clark, and Jennifer Hunt

in Hospice and Palliative Care in Africa: A Review of Developments and Challenges

Published in print:
2006
Published Online:
November 2011
ISBN:
9780199206803
eISBN:
9780191730474
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199206803.003.0005
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter describes the relationship between palliative care and existing health systems; the development of strategies for reaching the poorest of the poor, particularly in remote rural areas; ... More


Pain and Suffering

David J. Bearison

in When Treatment Fails: How medicine cares for dying children

Published in print:
2006
Published Online:
November 2011
ISBN:
9780195156126
eISBN:
9780199999873
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195156126.003.0005
Subject:
Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making

Pain and suffering are two things that can be experienced by patients in end-of-life care. For pediatric end-of-life care patients, perception of pain is defined by their cognitive level and age, ... More


Children and young adults

Ann Goldman and Ildiko Schuller

in Palliative Care for Non-cancer Patients

Published in print:
2001
Published Online:
November 2011
ISBN:
9780192629609
eISBN:
9780191730054
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192629609.003.0006
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making

Good support and palliative care are essential for children who are born with or develop a life-threatening disease. Focusing on the needs of children with life-threatening illness as a group and the ... More


Joey Court: Death of a Child

David Barnard, Patricia Boston R.N., Anna Towers, and Yanna Lambrinidou

in Crossing Over: Narratives of Palliative Care

Published in print:
2000
Published Online:
November 2011
ISBN:
9780195123432
eISBN:
9780199999835
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195123432.003.0020
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine and Older People

This chapter discusses Joey Court, a child with an unusual and invariably fatal medical disorder. Joey was expected to die from the first year of his life. Despite the severity of his condition, his ... More


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