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Hope for the Future

Christina M. Puchalski

in A Time for Listening and Caring: Spirituality and the Care of the Chronically Ill and Dying

Published in print:
2006
Published Online:
November 2011
ISBN:
9780195146820
eISBN:
9780199999866
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195146820.003.0024
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine and Older People

This chapter discusses the importance of patient experience in improving the quality of palliative care, highlighting the impact of the stories and advocacy of Rhonda Oziel and other terminally ill ... More


Archetypal stranger

Rachel Stanworth

in Recognizing Spiritual Needs in People who are Dying

Published in print:
2003
Published Online:
November 2011
ISBN:
9780198525110
eISBN:
9780191730504
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198525110.003.0013
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter discusses the archetypal stranger, which also emerges as an archetypal product of the psyche and as a linguistic phenomenon that involves archetypal metaphors. It discusses the two ... More


Radical activists’ new knowledge

Charlotte Williamson

in Towards the emancipation of patients: Patients' experiences and the patient movement

Published in print:
2010
Published Online:
March 2012
ISBN:
9781847427458
eISBN:
9781447304043
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781847427458.003.0005
Subject:
Public Health and Epidemiology, Public Health

This chapter examines the sources of radical patient activists' knowledge that they use to oppose low standards of care or oppressive practices and to propose higher standards. It discusses the main ... More


Understanding and Using Health Experiences: Improving patient care

Sue Ziebland, Angela Coulter, Joseph D. Calabrese, and Louise Locock (eds)

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.001.0001
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Narrative interviewing is an approach to eliciting people’s accounts, or stories, of their experiences. Widely used in social science research, it has gained prominence in health research since the ... More


Participatory action research: using experience-based co-design to improve the quality of healthcare services

Glenn Robert

in Understanding and Using Health Experiences: Improving patient care

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.003.0014
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Experienced-based Co-design (EBCD) is a form of participatory action research that specifically seeks to improve patient experiences, and therefore the broader quality, of healthcare services. Since ... More


Understanding the experience of illness and treatment

Angela Coulter

in Understanding and Using Health Experiences: Improving patient care

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.003.0002
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter serves as an introduction to the topic, including a brief outline of the history and development of the field. It argues that understanding patients’ experiences is a crucial element in ... More


Truths, Lies, and Partial Truths: The Debate Surrounding Intact D&E

Johanna Schoen

in Abortion After Roe

Published in print:
2015
Published Online:
May 2016
ISBN:
9781469621180
eISBN:
9781469623344
Item type:
chapter
Publisher:
University of North Carolina Press
DOI:
10.5149/northcarolina/9781469621180.003.0006
Subject:
History, Social History

The escalation of anti-abortion violence and killing of abortion providers and clinic staff in the early 1990s raised tensions within the abortion provider community. Frustrated with what they ... More


Patient experience surveys

Chris Graham and Penny Woods

in Understanding and Using Health Experiences: Improving patient care

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.003.0009
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Surveys of patients’ experiences are increasingly commonplace in healthcare. They are used to address a range of purposes, from driving quality improvements and informing patients to providing data ... More


Patients, Families, and Care Settings

Louise Locock, Glenn Robert, and Ninna Meier

in Context in Action and How to Study It: Illustrations from Health Care

Published in print:
2019
Published Online:
August 2019
ISBN:
9780198805304
eISBN:
9780191843419
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198805304.003.0009
Subject:
Business and Management, Organization Studies

Involving patients and family members as “experts by experience” in health care research and delivery has become accepted practice. There is a growing reliance on patients to manage their own care, ... More


Harnessing patients’ awareness of adverse reactions to the drugs they take

Claire Anderson and Andrew Herxheimer

in Understanding and Using Health Experiences: Improving patient care

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.003.0012
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter discusses adverse event reporting by patients and uses an example of how documentary analysis might be used to study patients’ reports. Pharmacovigilance is vital to patient safety as ... More


Old and Sick in America: The Journey through the Health Care System

Muriel R. Gillick

Published in print:
2017
Published Online:
May 2018
ISBN:
9781469635248
eISBN:
9781469635255
Item type:
book
Publisher:
University of North Carolina Press
DOI:
10.5149/northcarolina/9781469635248.001.0001
Subject:
Palliative Care, Palliative Medicine and Older People

Since the introduction of Medicare and Medicaid in 1965, the American health care system has grown in size and complexity. Muriel R. Gillick takes readers on a narrative tour of American health care, ... More


Next in Line: Lowered Care Expectations in the Age of Retail- and Value-Based Health

Timothy J. Hoff

Published in print:
2017
Published Online:
October 2017
ISBN:
9780190626341
eISBN:
9780190626372
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190626341.001.0001
Subject:
Public Health and Epidemiology, Public Health

The doctor-patient relationship is besieged by several forces transforming the health care system at the present time, particularly the introduction of retail thinking that seeks to turn patients ... More


Epilogue

Johanna Schoen

in Abortion After Roe

Published in print:
2015
Published Online:
May 2016
ISBN:
9781469621180
eISBN:
9781469623344
Item type:
chapter
Publisher:
University of North Carolina Press
DOI:
10.5149/northcarolina/9781469621180.003.0007
Subject:
History, Social History

The epilogue offers a brief overview of the history of legal abortion from the early 1970s to the 2000s. If patients and abortion providers could discuss their experience with abortion in positive ... More


Narrative interviewing

Sue Ziebland

in Understanding and Using Health Experiences: Improving patient care

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.003.0005
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Narrative interviewing is an approach to eliciting people’s accounts, or stories, of their experiences. Widely used in social science research, it has gained prominence in health research since the ... More


Using focus groups to understand experiences of health and illness

Jenny Kitzinger

in Understanding and Using Health Experiences: Improving patient care

Published in print:
2013
Published Online:
May 2013
ISBN:
9780199665372
eISBN:
9780191748585
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199665372.003.0006
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Focus groups are a qualitative method of data collection involving group discussion around a specific experience or issue. This approach can be particularly useful when researchers wish to encourage ... More


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