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Patient Participation in Palliative Care: A voice for the voiceless

Barbara Monroe and David Oliviere (eds)

Published in print:
2003
Published Online:
November 2011
ISBN:
9780198515814
eISBN:
9780191730498
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198515814.001.0001
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core ... More


Enhancing cancer patients' participation in medical consultations

Donald J Cegala and Dana Eisenberg

in Handbook of Communication in Oncology and Palliative Care

Published in print:
2010
Published Online:
November 2011
ISBN:
9780199238361
eISBN:
9780191730290
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199238361.003.0008
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

Over the last thirty years of research in primary care settings, considerable attention has been given to physician communication skills, but comparatively little to patient communication skills. ... More


Do Patients Want Shared Decision Making and How Is This Measured?

Martin Härter and Daniela Simon

in Better Doctors, Better Patients, Better Decisions: Envisioning Health Care 2020

Published in print:
2011
Published Online:
May 2016
ISBN:
9780262016032
eISBN:
9780262298957
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262016032.003.0004
Subject:
Psychology, Health Psychology

Shared decision making is an approach where clinicians and patients communicate together using the best available evidence when faced with the task of making decisions. The chapter presents an ... More


How Will Health Care Professionals and Patients Work Together in 2020?: A Manifesto for Change

Ralph Hertwig, Heather Buchan, David A. Davis, Wolfgang Gaissmaier, Martin Härter, Kai Kolpatzik, France Légaré, Norbert Schmacke, and Holger Wormer

in Better Doctors, Better Patients, Better Decisions: Envisioning Health Care 2020

Published in print:
2011
Published Online:
May 2016
ISBN:
9780262016032
eISBN:
9780262298957
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262016032.003.0019
Subject:
Psychology, Health Psychology

This report calls for a change in health care, while acknowledging that health care systems are highly complex systems for which there is no simple solution. The starting premise is that one needs to ... More


Patient information

Claire Read

in An Introduction to Clinical Governance and Patient Safety

Published in print:
2010
Published Online:
January 2011
ISBN:
9780199558612
eISBN:
9780191595011
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199558612.003.0040
Subject:
Public Health and Epidemiology, Public Health

The NHS Plan made patient information a key aspect of health care provision. The Plan made clear that providing appropriate information to service users was crucial to meeting the overriding goal of ... More


Conclusion: Patient Work in the Context of Personalization

Barbara Prainsack

in Personalized Medicine: Empowered Patients in the 21st Century?

Published in print:
2017
Published Online:
September 2018
ISBN:
9781479814879
eISBN:
9781479856909
Item type:
chapter
Publisher:
NYU Press
DOI:
10.18574/nyu/9781479814879.003.0008
Subject:
Sociology, Health, Illness, and Medicine

In order to create a personalized medicine that foregrounds factors that are important to patients and enhances social solidarity we need to repoliticize understandings of patient participation and ... More


Creatures of bounded rationality

William A. Silverman

in Where's the Evidence?: Debates in Modern Medicine

Published in print:
1999
Published Online:
September 2009
ISBN:
9780192630889
eISBN:
9780191723568
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192630889.003.0030
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter presents a 1995 commentary on decision making by doctors and patients. Studies show that in many situations, a decision seems to be influenced more by the threat of a loss than by the ... More


Dealing with Uncertainty: Payment Policy for the Generation of Evidence as Part of Clinical Practice

Carol M. Ashton and Nelda P. Wray

in Comparative Effectiveness Research: Evidence, Medicine, and Policy

Published in print:
2013
Published Online:
September 2013
ISBN:
9780199968565
eISBN:
9780199346080
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199968565.003.0012
Subject:
Public Health and Epidemiology, Public Health

Linking practice with evidence through payment policy will increase the value we get for the dollars we expend on medical care. But vast uncertainties exist in medicine. How should we proceed when ... More


Preferences

William A. Silverman

in Where's the Evidence?: Debates in Modern Medicine

Published in print:
1999
Published Online:
September 2009
ISBN:
9780192630889
eISBN:
9780191723568
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192630889.003.0023
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter presents a 1993 commentary on treatment choices for neonates. It considers a proposed observational study dubbed as a ‘preference trial’: the systematic follow up of patient cohorts ... More


Just Profit?

Barbara Prainsack

in Personalized Medicine: Empowered Patients in the 21st Century?

Published in print:
2017
Published Online:
September 2018
ISBN:
9781479814879
eISBN:
9781479856909
Item type:
chapter
Publisher:
NYU Press
DOI:
10.18574/nyu/9781479814879.003.0005
Subject:
Sociology, Health, Illness, and Medicine

In the literature, striving for financial profits and shareholder value is often contrasted with the quest to create social value and societal wellbeing. The ways that today’s health entrepreneurism ... More


Broad versus narrow shared decision making: Patients’ involvement in real world contexts

Vikki A. Entwistle and Ian S. Watt

in Shared Decision Making in Health Care: Achieving evidence-based patient choice

Published in print:
2016
Published Online:
September 2016
ISBN:
9780198723448
eISBN:
9780191790096
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198723448.003.0002
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Ideas about ‘patient involvement in decision making’ and ‘shared decision making’ (SDM) have developed significantly in recent years as practices associated with these concepts have been promoted and ... More


Shared decision making: A path to customized rather than commercialized health care

Glyn Elwyn and Adrian Edwards

in Shared Decision Making in Health Care: Achieving evidence-based patient choice

Published in print:
2016
Published Online:
September 2016
ISBN:
9780198723448
eISBN:
9780191790096
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198723448.003.0001
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter reflects on arguments supporting achievement of shared decision making (SDM). Policy support for SDM has been evident in many countries and research by many groups has investigated the ... More


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