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The Work of Patient Advocacy

Duana Fullwiley

in The Enculturated Gene: Sickle Cell Health Politics and Biological Difference in West Africa

Published in print:
2011
Published Online:
October 2017
ISBN:
9780691123165
eISBN:
9781400840410
Item type:
chapter
Publisher:
Princeton University Press
DOI:
10.23943/princeton/9780691123165.003.0007
Subject:
Anthropology, Social and Cultural Anthropology

This chapter further explores issues of patients' tenacity to shape science, through advocacy on an international level, and investigates the ways that making a disease public in Africa often entails ... More


FDA and the Rise of the Empowered Patient

Lewis A. Grossman

in FDA in the Twenty-First Century: The Challenges of Regulating Drugs and New Technologies

Published in print:
2015
Published Online:
May 2016
ISBN:
9780231171182
eISBN:
9780231540070
Item type:
chapter
Publisher:
Columbia University Press
DOI:
10.7312/columbia/9780231171182.003.0005
Subject:
Law, Medical Law

Although as recently as the 1970s patients had virtually no voice in FDA’s regulation of drugs, today patient advocates regularly use various administrative mechanisms to influence and even directly ... More


Disease Constituencies

Rachel Kahn Best

in Common Enemies: Disease Campaigns in America

Published in print:
2019
Published Online:
August 2019
ISBN:
9780190918408
eISBN:
9780190918446
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190918408.003.0003
Subject:
Sociology, Social Movements and Social Change, Health, Illness, and Medicine

In the second half of the twentieth century, disease advocacy evolved from universal campaigns to patients’ constituencies. Changes in the experience of health and illness and the nationwide ... More


What can patients and patient groups do to promote shared decision making?

Kristin L. Carman, Thomas A. Workman, and Marla L. Clayman

in Shared Decision Making in Health Care: Achieving evidence-based patient choice

Published in print:
2016
Published Online:
September 2016
ISBN:
9780198723448
eISBN:
9780191790096
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198723448.003.0042
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

At a time when patient and family engagement in health care is rapidly expanding, patients and patient advocacy groups have increasing opportunities to advance shared decision making (SDM). We ... More


The Politics of Self-Medication

Jessica Flanigan

in Pharmaceutical Freedom: Why Patients Have a Right to Self Medicate

Published in print:
2017
Published Online:
August 2017
ISBN:
9780190684549
eISBN:
9780190684570
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190684549.003.0005
Subject:
Philosophy, Political Philosophy

Patients can advocate for rights of self-medication in several ways. First, patients should be included in the process of drug development and should not be prohibited from developing and testing ... More


The politics of trans health: negotiating credible knowledge

Ruth Pearce

in Understanding Trans Health: Discourse, Power and Possibility

Published in print:
2018
Published Online:
January 2019
ISBN:
9781447342335
eISBN:
9781447342380
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447342335.003.0006
Subject:
Sociology, Gender and Sexuality

This chapter analyzes ‘epistemic politics’: that is, the politics of knowledge production. It focuses particularly on the process of trans patient advocacy, looking at how individual interventions ... More


Emergency Medicine

Lisa Moreno-Walton

in First Do No Self Harm: Understanding and Promoting Physician Stress Resilience

Published in print:
2013
Published Online:
January 2014
ISBN:
9780195383263
eISBN:
9780199344871
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195383263.003.0024
Subject:
Social Work, Health and Mental Health

Lisa Moreno-Walton, a Tulane University emergency physician, associate professor and medical educator, writes about her profession in Chapter 24, addressing three fundamental questions. Why do ... More


Physicians as Bellwethers

Susan Dorr Goold

in Fair Resource Allocation and Rationing at the Bedside

Published in print:
2014
Published Online:
November 2014
ISBN:
9780199989447
eISBN:
9780190207489
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199989447.003.0022
Subject:
Philosophy, Moral Philosophy

This chapter examines the value of physicians’ experience in calling attention to rationing and its effects on the practice of medicine and the quality of patient care. Physicians’ position in direct ... More


Race, Difference, and Genes

Myles W. Jackson

in The Genealogy of a Gene: Patents, HIV/AIDS, and Race

Published in print:
2015
Published Online:
September 2015
ISBN:
9780262028660
eISBN:
9780262327190
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262028660.003.0008
Subject:
History, History of Science, Technology, and Medicine

This chapter situates the CCR5 gene, specifically the Δ‎32 allele, in the contexts of four distinct yet related enterprises- race and genomics, Big Pharma, personalized medicine, and personal ... More


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