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Global Trends Toward Transparency in Participant-Level Clinical Trials Data

Alla Digilova, Rebecca Li, Mark Barnes, and Barbara Bierer

in FDA in the Twenty-First Century: The Challenges of Regulating Drugs and New Technologies

Published in print:
2015
Published Online:
May 2016
ISBN:
9780231171182
eISBN:
9780231540070
Item type:
chapter
Publisher:
Columbia University Press
DOI:
10.7312/columbia/9780231171182.003.0009
Subject:
Law, Medical Law

In this chapter, the authors review recent regulatory and private efforts focused on broadening access to participant-level data collected as part of clinical trials. The authors consider the risks ... More


Traversing Digital Babel: Information, E-Government, and Exchange

Alon Peled

Published in print:
2014
Published Online:
May 2015
ISBN:
9780262027878
eISBN:
9780262319867
Item type:
book
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027878.001.0001
Subject:
Political Science, Public Policy

Information sharing failures in the public sector present a critical challenge to the modern information state that costs lives and billions of dollars annually. The book presents a thorough ... More


Why Open Data Finds Agencies’ Doors Closed

Alon Peled

in Traversing Digital Babel: Information, E-Government, and Exchange

Published in print:
2014
Published Online:
May 2015
ISBN:
9780262027878
eISBN:
9780262319867
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027878.003.0004
Subject:
Political Science, Public Policy

The chapter defines open data and describes the inception, evolution and vision of open data programs in the US and worldwide. The chapter then presents a thorough empirical analysis of the US open ... More


Managing Data Journeys: Social Structures

Sabina Leonelli

in Data-Centric Biology: A Philosophical Study

Published in print:
2016
Published Online:
May 2017
ISBN:
9780226416335
eISBN:
9780226416502
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226416502.003.0003
Subject:
Philosophy, Philosophy of Science

Chapter 2 broadens the scope of my analysis by considering the social structures of data-centric biology and some of the reasons why data have taken a central place in contemporary science and policy ... More


Mapping Kibera. Empowering Slum Residents by ICT

Primož Kovačič and Jamie Lundine

in Bits and Atoms: Information and Communication Technology in Areas of Limited Statehood

Published in print:
2014
Published Online:
January 2014
ISBN:
9780199941599
eISBN:
9780199349517
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199941599.003.0008
Subject:
Political Science, International Relations and Politics, Democratization

This chapter presents insights from practitioners with over three years of experience in the digital mapping of informal settlements in Kenya’s capital, Nairobi. Nairobi’s informal settlements are ... More


Data-Centric Biology: A Philosophical Study

Sabina Leonelli

Published in print:
2016
Published Online:
May 2017
ISBN:
9780226416335
eISBN:
9780226416502
Item type:
book
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226416502.001.0001
Subject:
Philosophy, Philosophy of Science

The convergence of new technologies for the production, dissemination and analysis of scientific data and new regulatory regimes has provoked a reshuffling of priorities in research practices and ... More


Secondary Data: Taking advantage of existing data and improving data availability for supporting freshwater ecology research and biodiversity conservation

Aaike De Wever, Astrid Schmidt-Kloiber, Vanessa Bremerich, and Joerg Freyhof

in Freshwater Ecology and Conservation: Approaches and Techniques

Published in print:
2018
Published Online:
February 2019
ISBN:
9780198766384
eISBN:
9780191820908
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198766384.003.0014
Subject:
Biology, Aquatic Biology, Biodiversity / Conservation Biology

Understanding biodiversity change and addressing questions in freshwater management and conservation requires access to biodiversity data and information. Unfortunately, large, comprehensive data ... More


Conclusion

Bruno J. Strasser

in Collecting Experiments: Making Big Data Biology

Published in print:
2019
Published Online:
January 2020
ISBN:
9780226634999
eISBN:
9780226635187
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226635187.003.0008
Subject:
History, History of Science, Technology, and Medicine

The concluding chapter offers an original framework for thinking about the history of biology, a new argument about the current state of biomedical research, and some guidance to solving the current ... More


Data Archiving and Sharing

Michael Hochberg

in An Editor's Guide to Writing and Publishing Science

Published in print:
2019
Published Online:
August 2019
ISBN:
9780198804789
eISBN:
9780191843051
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198804789.003.0020
Subject:
Biology, Biomathematics / Statistics and Data Analysis / Complexity Studies

Many journals require data archiving as a condition for publication. Archiving permits verification of results and future use of data. However, data archiving presents some challenges, the most ... More


Healthcare and Health Research

José van

in The Platform Society

Published in print:
2018
Published Online:
October 2018
ISBN:
9780190889760
eISBN:
9780190889807
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190889760.003.0006
Subject:
Literature, Film, Media, and Cultural Studies

This chapter focuses on the platformization of the health sector. A burgeoning field of online health platforms has emerged, ranging from personal fitness apps to medical platforms that are used by ... More


Conclusion

Sabina Leonelli

in Data-Centric Biology: A Philosophical Study

Published in print:
2016
Published Online:
May 2017
ISBN:
9780226416335
eISBN:
9780226416502
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226416502.003.0009
Subject:
Philosophy, Philosophy of Science

The conclusion summarises the arguments within the book. I defend the idea that data-centrism brings new salience to aspects of scientific practice which have always been vital to successful ... More


Background and Definitions

Brian Fitzgerald, Jay P. Kesan, Barbara Russo, Maha Shaikh, and Giancarlo Succi

in Adopting Open Source Software: A Practical Guide

Published in print:
2011
Published Online:
August 2013
ISBN:
9780262516358
eISBN:
9780262298261
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262516358.003.0002
Subject:
Information Science, Information Science

This chapter provides an introduction to the basic terminology related to the adoption of open source software (OSS), which include proprietary software, proprietary data standards, and open data ... More


Engineering Policy Norm Implementation: The World Bank’s Transparency Transformation

Catherine Weaver and Christian Peratsakis

in Implementation and World Politics: How International Norms Change Practice

Published in print:
2014
Published Online:
August 2014
ISBN:
9780198712787
eISBN:
9780191781162
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198712787.003.0010
Subject:
Political Science, International Relations and Politics

This chapter examines the evolution and implementation of the transparency policy norm at the World Bank. Drawing from primary interviews, archival research, participant observation, and detailed ... More


Ethics and Integrity in Scientific Communication

Alan Kelly

in How Scientists Communicate: Dispatches from the Frontiers of Knowledge

Published in print:
2020
Published Online:
August 2020
ISBN:
9780190936600
eISBN:
9780197521038
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190936600.003.0007
Subject:
Physics, History of Physics

Today, a major consideration in scientific publishing is obviously ethical issues or those relating to research integrity, and key concepts around falsification, fabrication, and plagiarism are ... More


The Best Tools to Tackle the Job

Andrea Volkens, Judith Bara, Ian Budge, Michael D. McDonald, Robin Best, and Simon Franzmann

in Mapping Policy Preferences From Texts: Statistical Solutions for Manifesto Analysts

Published in print:
2013
Published Online:
January 2014
ISBN:
9780199640041
eISBN:
9780191757181
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199640041.003.0002
Subject:
Political Science, Comparative Politics

This chapter demonstrates the uniqueness of the Manifesto estimates and encapsulates the main objective of the book, which is to review methodological issues that have got in the way of ... More


Protection of and Access to Relevant Data—General Issues

Kung-Chung Liu and Shufeng Zheng

in Artificial Intelligence and Intellectual Property

Published in print:
2021
Published Online:
April 2021
ISBN:
9780198870944
eISBN:
9780191913532
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198870944.003.0017
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter discusses the protection of relevant data and issues that might block access to such data. There are at least three kinds of data, data specifically generated for the purpose of AI, big ... More


Conclusion: why do governments pass FOI laws?

Ben Worthy

in The Politics of Freedom of Information: How and Why Governments Pass Laws that Threaten their Power

Published in print:
2017
Published Online:
September 2017
ISBN:
9780719097676
eISBN:
9781526124159
Item type:
chapter
Publisher:
Manchester University Press
DOI:
10.7228/manchester/9780719097676.003.0011
Subject:
Political Science, Political Theory

The chapter maps out the competing dynamics of transparency reform, a policy with symbolic power that traps governments while becoming a site of contestation. In many countries FOI ‘survives’ because ... More


Policy Hacking: Citizen-based Policy-Making and Media Reform

Arne Hintz

in Strategies for Media Reform: International Perspectives

Published in print:
2016
Published Online:
January 2017
ISBN:
9780823271641
eISBN:
9780823271696
Item type:
chapter
Publisher:
Fordham University Press
DOI:
10.5422/fordham/9780823271641.003.0018
Subject:
Information Science, Communications

Policy hacking is a media reform strategy that focuses on citizen-based do-it-yourself policy alternatives and the development of new law and regulation. Typically it encompasses a) collecting and ... More


The Logic of Physics versus the Logic of Computer Science

Bebo White and Adolfo Plasencia

in Is the Universe a Hologram?: Scientists Answer the Most Provocative Questions

Published in print:
2017
Published Online:
January 2018
ISBN:
9780262036016
eISBN:
9780262339308
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262036016.003.0013
Subject:
Society and Culture, Technology and Society

Bebo White, the physicist and computational scientist at the SLAC National Accelerator Laboratory in Stanford University, was one of the first people to get involved in Web technology as a result of ... More


A new methodology for quantitative historical linguistics

Gard B. Jenset and Barbara McGillivray

in Quantitative Historical Linguistics: A Corpus Framework

Published in print:
2017
Published Online:
October 2017
ISBN:
9780198718178
eISBN:
9780191787515
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198718178.003.0007
Subject:
Linguistics, Historical Linguistics

Chapter 7 summarizes the book and discusses how the proposed framework provides researchers with the methodological guidance to answer new questions, as well as answering existing questions in new ... More


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