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Global Trends Toward Transparency in Participant-Level Clinical Trials Data

Alla Digilova, Rebecca Li, Mark Barnes, and Barbara Bierer

in FDA in the Twenty-First Century: The Challenges of Regulating Drugs and New Technologies

Published in print:
2015
Published Online:
May 2016
ISBN:
9780231171182
eISBN:
9780231540070
Item type:
chapter
Publisher:
Columbia University Press
DOI:
10.7312/columbia/9780231171182.003.0009
Subject:
Law, Medical Law

In this chapter, the authors review recent regulatory and private efforts focused on broadening access to participant-level data collected as part of clinical trials. The authors consider the risks ... More


Traversing Digital Babel: Information, E-Government, and Exchange

Alon Peled

Published in print:
2014
Published Online:
May 2015
ISBN:
9780262027878
eISBN:
9780262319867
Item type:
book
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027878.001.0001
Subject:
Political Science, Public Policy

Information sharing failures in the public sector present a critical challenge to the modern information state that costs lives and billions of dollars annually. The book presents a thorough ... More


Why Open Data Finds Agencies’ Doors Closed

Alon Peled

in Traversing Digital Babel: Information, E-Government, and Exchange

Published in print:
2014
Published Online:
May 2015
ISBN:
9780262027878
eISBN:
9780262319867
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027878.003.0004
Subject:
Political Science, Public Policy

The chapter defines open data and describes the inception, evolution and vision of open data programs in the US and worldwide. The chapter then presents a thorough empirical analysis of the US open ... More


The Data

Janet Vertesi

in Shaping Science: Organizations, Decisions, and Culture on NASA's Teams

Published in print:
2020
Published Online:
May 2021
ISBN:
9780226691084
eISBN:
9780226691114
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226691114.003.0009
Subject:
History, History of Science, Technology, and Medicine

Information does not want to be free. On planetary teams, considerable tension accompanies the call for "open data." This chapter explains scientists' concerns for or embrace of open data as a result ... More


The Australian Consumer Data Right: The Promise of Open Data

Jamie Leach and Julie McKay

in Open Banking

Published in print:
2022
Published Online:
March 2022
ISBN:
9780197582879
eISBN:
9780197582909
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780197582879.003.0011
Subject:
Law, Intellectual Property, IT, and Media Law

In Chapter 10, “The Australian Consumer Data Right: The Promise of Open Data,” Jamie Leach, Regional Director of FDATA Australia & New Zealand and Founder of Open Data Australia and Julie McKay, ... More


Managing Data Journeys: Social Structures

Sabina Leonelli

in Data-Centric Biology: A Philosophical Study

Published in print:
2016
Published Online:
May 2017
ISBN:
9780226416335
eISBN:
9780226416502
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226416502.003.0003
Subject:
Philosophy, Philosophy of Science

Chapter 2 broadens the scope of my analysis by considering the social structures of data-centric biology and some of the reasons why data have taken a central place in contemporary science and policy ... More


Open Banking and the Economics of Data

Yan Carrière-Swallow and Vikram Haksar

in Open Banking

Published in print:
2022
Published Online:
March 2022
ISBN:
9780197582879
eISBN:
9780197582909
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780197582879.003.0008
Subject:
Law, Intellectual Property, IT, and Media Law

In Chapter 7, “Open Banking and the Economics of Data,” by the IMF’s Yan Carrière-Swallow and Vikram Haksar, provides an economic framework for thinking about the value of individual data and the ... More


Open Banking, Open Data, and Open Finance: Lessons from the European Union

Douglas W. Arner, Ross P. Buckley, and Dirk A. Zetzsche

in Open Banking

Published in print:
2022
Published Online:
March 2022
ISBN:
9780197582879
eISBN:
9780197582909
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780197582879.003.0009
Subject:
Law, Intellectual Property, IT, and Media Law

Chapter 8, “Open Banking, Open Data, and Open Finance: Lessons from the European Union,” by Douglas W. Arner, Kerry Holdings Professor in Law, Hong Kong University, Ross P. Buckley, KMPG Law and King ... More


Taking Your Data with You: Singapore’s Approach to Data Portability

Zee Kin Yeong and David Roi Hardoon

in Open Banking

Published in print:
2022
Published Online:
March 2022
ISBN:
9780197582879
eISBN:
9780197582909
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780197582879.003.0007
Subject:
Law, Intellectual Property, IT, and Media Law

Chapter 6, “Taking Your Data with You: Singapore’s Approach to Data Portability,” authored by Zee Kin Yeong, Deputy Commissioner of Singapore’s Personal Data Protection Commission, and David Roi ... More


Open Banking

Linda Jeng (ed.)

Published in print:
2022
Published Online:
March 2022
ISBN:
9780197582879
eISBN:
9780197582909
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780197582879.001.0001
Subject:
Law, Intellectual Property, IT, and Media Law

Consumers are growing more aware of the importance and value of the data they personally generate across industries and domains. Financial services is one such area where the link between one’s ... More


Mapping Kibera. Empowering Slum Residents by ICT

Primož Kovačič and Jamie Lundine

in Bits and Atoms: Information and Communication Technology in Areas of Limited Statehood

Published in print:
2014
Published Online:
January 2014
ISBN:
9780199941599
eISBN:
9780199349517
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199941599.003.0008
Subject:
Political Science, International Relations and Politics, Democratization

This chapter presents insights from practitioners with over three years of experience in the digital mapping of informal settlements in Kenya’s capital, Nairobi. Nairobi’s informal settlements are ... More


Data-Centric Biology: A Philosophical Study

Sabina Leonelli

Published in print:
2016
Published Online:
May 2017
ISBN:
9780226416335
eISBN:
9780226416502
Item type:
book
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226416502.001.0001
Subject:
Philosophy, Philosophy of Science

The convergence of new technologies for the production, dissemination and analysis of scientific data and new regulatory regimes has provoked a reshuffling of priorities in research practices and ... More


Open-and-Shut Case

Rob Kitchin

in Data Lives: How Data Are Made and Shape Our World

Published in print:
2021
Published Online:
September 2021
ISBN:
9781529215144
eISBN:
9781529215168
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781529215144.003.0008
Subject:
Sociology, Science, Technology and Environment

This chapter details a conversation between open data advocates and a civil servant in charge of the process, which reveals the challenges of getting government data made open. Without an injection ... More


From Open Banking to Open Data and Beyond: Competition and the Future of Banking

Brad Carr

in Open Banking

Published in print:
2022
Published Online:
March 2022
ISBN:
9780197582879
eISBN:
9780197582909
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780197582879.003.0015
Subject:
Law, Intellectual Property, IT, and Media Law

Brad Carr, Managing Director of Digital Finance at the Institute of International Finance, concludes the book with a futurist exploration of open banking in “From Open Banking to Open Data and ... More


Secondary Data: Taking advantage of existing data and improving data availability for supporting freshwater ecology research and biodiversity conservation

Aaike De Wever, Astrid Schmidt-Kloiber, Vanessa Bremerich, and Joerg Freyhof

in Freshwater Ecology and Conservation: Approaches and Techniques

Published in print:
2018
Published Online:
February 2019
ISBN:
9780198766384
eISBN:
9780191820908
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198766384.003.0014
Subject:
Biology, Aquatic Biology, Biodiversity / Conservation Biology

Understanding biodiversity change and addressing questions in freshwater management and conservation requires access to biodiversity data and information. Unfortunately, large, comprehensive data ... More


Conclusion

Bruno J. Strasser

in Collecting Experiments: Making Big Data Biology

Published in print:
2019
Published Online:
January 2020
ISBN:
9780226634999
eISBN:
9780226635187
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226635187.003.0008
Subject:
History, History of Science, Technology, and Medicine

The concluding chapter offers an original framework for thinking about the history of biology, a new argument about the current state of biomedical research, and some guidance to solving the current ... More


Protection of and Access to Relevant Data—General Issues

Kung-Chung Liu and Shufeng Zheng

in Artificial Intelligence and Intellectual Property

Published in print:
2021
Published Online:
April 2021
ISBN:
9780198870944
eISBN:
9780191913532
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198870944.003.0017
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter discusses the protection of relevant data and issues that might block access to such data. There are at least three kinds of data, data specifically generated for the purpose of AI, big ... More


Data Archiving and Sharing

Michael Hochberg

in An Editor's Guide to Writing and Publishing Science

Published in print:
2019
Published Online:
August 2019
ISBN:
9780198804789
eISBN:
9780191843051
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198804789.003.0020
Subject:
Biology, Biomathematics / Statistics and Data Analysis / Complexity Studies

Many journals require data archiving as a condition for publication. Archiving permits verification of results and future use of data. However, data archiving presents some challenges, the most ... More


The Politics of Building Civic Tech

Rob Kitchin

in Data Lives: How Data Are Made and Shape Our World

Published in print:
2021
Published Online:
September 2021
ISBN:
9781529215144
eISBN:
9781529215168
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781529215144.003.0009
Subject:
Sociology, Science, Technology and Environment

This chapter evaluates the technical and political trials involved in building a suite of open data tools by charting the development of the Dublin Dashboard. Building a city dashboard is a good way ... More


Background and Definitions

Brian Fitzgerald, Jay P. Kesan, Barbara Russo, Maha Shaikh, and Giancarlo Succi

in Adopting Open Source Software: A Practical Guide

Published in print:
2011
Published Online:
August 2013
ISBN:
9780262516358
eISBN:
9780262298261
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262516358.003.0002
Subject:
Information Science, Information Science

This chapter provides an introduction to the basic terminology related to the adoption of open source software (OSS), which include proprietary software, proprietary data standards, and open data ... More


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