Julie Hearn and Kathryn Myers (eds)
- Published in print:
- 2001
- Published Online:
- November 2011
- ISBN:
- 9780192631831
- eISBN:
- 9780191730221
- Item type:
- book
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780192631831.001.0001
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology
Day care for people with advanced diseases is one of the most rapidly expanding components of palliative care in the UK, and is increasingly a focus of new-service development throughout the world. ...
More
Day care for people with advanced diseases is one of the most rapidly expanding components of palliative care in the UK, and is increasingly a focus of new-service development throughout the world. Many benefits, in terms of quality of life, holistic care for the patient and family and increased time at home are claimed by day care. This book provides a comprehensive overview of the current philosophy, patterns, and policies of palliative day care. It places emphasis on the need to evaluate performance in palliative day care and describes in detail aspects such as audit, health economics, and research, and their associated problems and pitfalls. For readers new to the field it aims to survey the broad concepts and components of palliative day care and the philosophies and practical issues that relate to them. For those more experienced in the field, it seeks to highlight some of the questions, challenges, and dilemmas that palliative day care services face and which will need to be addressed in the years ahead.Less
Day care for people with advanced diseases is one of the most rapidly expanding components of palliative care in the UK, and is increasingly a focus of new-service development throughout the world. Many benefits, in terms of quality of life, holistic care for the patient and family and increased time at home are claimed by day care. This book provides a comprehensive overview of the current philosophy, patterns, and policies of palliative day care. It places emphasis on the need to evaluate performance in palliative day care and describes in detail aspects such as audit, health economics, and research, and their associated problems and pitfalls. For readers new to the field it aims to survey the broad concepts and components of palliative day care and the philosophies and practical issues that relate to them. For those more experienced in the field, it seeks to highlight some of the questions, challenges, and dilemmas that palliative day care services face and which will need to be addressed in the years ahead.
Fiona Randall and R. S. Downie
- Published in print:
- 2009
- Published Online:
- November 2011
- ISBN:
- 9780199547333
- eISBN:
- 9780191730405
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199547333.003.0011
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research
This chapter examines the issue of end of life care patients' ‘best interests’ in its various extended forms. It analyses the controversial view of specialist palliative care that the unit of care is ...
More
This chapter examines the issue of end of life care patients' ‘best interests’ in its various extended forms. It analyses the controversial view of specialist palliative care that the unit of care is the patient and relatives and that the best interests of the relatives must also be considered in making clinical decisions. Whole person or holistic care is acceptable as an aim of end of life care, but the term must be used with caution because a patient's wholeness extends well beyond anything that health care interventions at the end of life can encompass. The aims of end of life care should include the sensitive provision to patients of information about their illness in order to enable them to take part in decisions and lessen emotional distress.Less
This chapter examines the issue of end of life care patients' ‘best interests’ in its various extended forms. It analyses the controversial view of specialist palliative care that the unit of care is the patient and relatives and that the best interests of the relatives must also be considered in making clinical decisions. Whole person or holistic care is acceptable as an aim of end of life care, but the term must be used with caution because a patient's wholeness extends well beyond anything that health care interventions at the end of life can encompass. The aims of end of life care should include the sensitive provision to patients of information about their illness in order to enable them to take part in decisions and lessen emotional distress.
Julian Hughes, Mari Lloyd-Williams, and Greg Sachs (eds)
- Published in print:
- 2009
- Published Online:
- November 2011
- ISBN:
- 9780199554133
- eISBN:
- 9780191730269
- Item type:
- book
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199554133.001.0001
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology
Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care ...
More
Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach and for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application. This book provides such a perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition.Less
Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach and for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application. This book provides such a perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition.
Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs
- Published in print:
- 2009
- Published Online:
- November 2011
- ISBN:
- 9780199554133
- eISBN:
- 9780191730269
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199554133.003.0001
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology
This chapter considers the conceptual problem: how do we characterize the care that is due to people with dementia in such a way as to capture all its possible, desirable, and necessary aspects? It ...
More
This chapter considers the conceptual problem: how do we characterize the care that is due to people with dementia in such a way as to capture all its possible, desirable, and necessary aspects? It identifies the problems lying behind the conceptual question as being to do with the dichotomies and divisions inherent in the different approaches to dementia care. The conceptual conclusion has led in the direction of supportive care, which is a suitable way to characterize the nature of the care owing to people with dementia. Even at this preliminary stage, the supportive care model envisaged allows room for the full benefits of the palliative care approach and good quality end-of-life care to be harnessed, whilst still accommodating the biopsychosocial and spiritual dimensions of holistic care from the time of diagnosis.Less
This chapter considers the conceptual problem: how do we characterize the care that is due to people with dementia in such a way as to capture all its possible, desirable, and necessary aspects? It identifies the problems lying behind the conceptual question as being to do with the dichotomies and divisions inherent in the different approaches to dementia care. The conceptual conclusion has led in the direction of supportive care, which is a suitable way to characterize the nature of the care owing to people with dementia. Even at this preliminary stage, the supportive care model envisaged allows room for the full benefits of the palliative care approach and good quality end-of-life care to be harnessed, whilst still accommodating the biopsychosocial and spiritual dimensions of holistic care from the time of diagnosis.
Fiona Randall and R.S. Downie
- Published in print:
- 1999
- Published Online:
- November 2011
- ISBN:
- 9780192630681
- eISBN:
- 9780191730078
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780192630681.003.0001
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making
This chapter begins by introducing the ethical concepts and principles that are used in contemporary discussions of health care. It then discusses the aims of palliative care, relating them to the ...
More
This chapter begins by introducing the ethical concepts and principles that are used in contemporary discussions of health care. It then discusses the aims of palliative care, relating them to the general aims of health care, and finally puts the ethics and the aims together, showing how these are integrated. The chapter notes that to adopt the aims of palliative care is to adopt a moral standpoint. The intrinsic aim of palliative care, as part of health care, is the promotion of a medical good related to physical or mental illness. This professional treatment must be humane and show full appreciation of the meaning of the disease, suffering, and treatment for the particular patient, or of its place in the patient's conception of his total good.Less
This chapter begins by introducing the ethical concepts and principles that are used in contemporary discussions of health care. It then discusses the aims of palliative care, relating them to the general aims of health care, and finally puts the ethics and the aims together, showing how these are integrated. The chapter notes that to adopt the aims of palliative care is to adopt a moral standpoint. The intrinsic aim of palliative care, as part of health care, is the promotion of a medical good related to physical or mental illness. This professional treatment must be humane and show full appreciation of the meaning of the disease, suffering, and treatment for the particular patient, or of its place in the patient's conception of his total good.
Joan Marston
- Published in print:
- 2007
- Published Online:
- November 2011
- ISBN:
- 9780199206414
- eISBN:
- 9780191730320
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199206414.003.0007
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research
This chapter examines resilience in the paediatric palliative care setting. Children facing life-threatening illness, whether in themselves or a close family member, and children experiencing loss, ...
More
This chapter examines resilience in the paediatric palliative care setting. Children facing life-threatening illness, whether in themselves or a close family member, and children experiencing loss, are made especially vulnerable by external factors and situations over which they have little or no control. Children's resilience can be developed or improved through skilled and compassionate holistic care, involving a multidisciplinary approach.Less
This chapter examines resilience in the paediatric palliative care setting. Children facing life-threatening illness, whether in themselves or a close family member, and children experiencing loss, are made especially vulnerable by external factors and situations over which they have little or no control. Children's resilience can be developed or improved through skilled and compassionate holistic care, involving a multidisciplinary approach.
Fiona Randall
- Published in print:
- 2006
- Published Online:
- November 2011
- ISBN:
- 9780198567363
- eISBN:
- 9780191730535
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780198567363.003.0009
- Subject:
- Palliative Care, Palliative Medicine Research
This chapter aims to summarize the positive suggestions discussed in the previous chapters. It also aims to develop some suggestions, to illustrate how palliative care can enhance and improve other ...
More
This chapter aims to summarize the positive suggestions discussed in the previous chapters. It also aims to develop some suggestions, to illustrate how palliative care can enhance and improve other specialties, and to suggest a short philosophy statement that can counter the weaknesses of the WHO statement. The chapter begins with a discussion on palliative care as a specialty. Other topics and issues discussed herein include: the Asklepian model of holistic care, Asklepian acceptance and spirituality, hope and truth-telling, patient–professional relationship, and professional development.Less
This chapter aims to summarize the positive suggestions discussed in the previous chapters. It also aims to develop some suggestions, to illustrate how palliative care can enhance and improve other specialties, and to suggest a short philosophy statement that can counter the weaknesses of the WHO statement. The chapter begins with a discussion on palliative care as a specialty. Other topics and issues discussed herein include: the Asklepian model of holistic care, Asklepian acceptance and spirituality, hope and truth-telling, patient–professional relationship, and professional development.
Kim Devery
- Published in print:
- 2009
- Published Online:
- November 2011
- ISBN:
- 9780199546695
- eISBN:
- 9780191730214
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199546695.003.0005
- Subject:
- Palliative Care, Palliative Medicine Research, Patient Care and End-of-Life Decision Making
This chapter discusses a new direction in narrative and research, and considers how narrative might contribute to the evidence based in palliative care. It is argued in this chapter that palliative ...
More
This chapter discusses a new direction in narrative and research, and considers how narrative might contribute to the evidence based in palliative care. It is argued in this chapter that palliative care's commitment to holistic and person-centre care demands multiple sources of evidence.Less
This chapter discusses a new direction in narrative and research, and considers how narrative might contribute to the evidence based in palliative care. It is argued in this chapter that palliative care's commitment to holistic and person-centre care demands multiple sources of evidence.
Perry N. Halkitis
- Published in print:
- 2013
- Published Online:
- January 2014
- ISBN:
- 9780199944972
- eISBN:
- 9780199352470
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199944972.003.0004
- Subject:
- Public Health and Epidemiology, Public Health, Epidemiology
The crisis of an HIV or AIDS diagnosis for the men of the AIDS Generation is examined in relation to an Eriksonian frame and a disruption of the normal process of human development. The holistic ...
More
The crisis of an HIV or AIDS diagnosis for the men of the AIDS Generation is examined in relation to an Eriksonian frame and a disruption of the normal process of human development. The holistic approaches utilized by the men of the AIDS Generation to survive the epidemic are shared and considered with regard to the physical, psychological, and social domains of well-being. Early medical interventions and approaches are reviewed and described in the experiences of the men. The development of social networks and activist agencies are considered with regard to the development of social cohesion and capital. The enactment of personal relationships are considered with regard to emotional well-being. Strategies for survival that attend to the whole person are emphasized. An examination of spirit and will-to-live is described in relation to the narratives shared by the men of the AIDS Generation.Less
The crisis of an HIV or AIDS diagnosis for the men of the AIDS Generation is examined in relation to an Eriksonian frame and a disruption of the normal process of human development. The holistic approaches utilized by the men of the AIDS Generation to survive the epidemic are shared and considered with regard to the physical, psychological, and social domains of well-being. Early medical interventions and approaches are reviewed and described in the experiences of the men. The development of social networks and activist agencies are considered with regard to the development of social cohesion and capital. The enactment of personal relationships are considered with regard to emotional well-being. Strategies for survival that attend to the whole person are emphasized. An examination of spirit and will-to-live is described in relation to the narratives shared by the men of the AIDS Generation.
Daniel Cukor, Eileen M Farrell, Lewis M Cohen, and Paul L Kimmel
- Published in print:
- 2010
- Published Online:
- November 2011
- ISBN:
- 9780199560035
- eISBN:
- 9780191730139
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199560035.003.0010
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology
This chapter discusses the major psychological reactions to a chronic condition such as ESRD. It suggests an approach that would help provide optimum holistic patient care and provides a summary of ...
More
This chapter discusses the major psychological reactions to a chronic condition such as ESRD. It suggests an approach that would help provide optimum holistic patient care and provides a summary of treatment issues in the management of common co-morbid psychiatric disorders in patients with kidney disease. The chapter begins with a detailed case report before mentioning a number of co-morbid mental health issues and some patients' fears of sexual dysfunction.Less
This chapter discusses the major psychological reactions to a chronic condition such as ESRD. It suggests an approach that would help provide optimum holistic patient care and provides a summary of treatment issues in the management of common co-morbid psychiatric disorders in patients with kidney disease. The chapter begins with a detailed case report before mentioning a number of co-morbid mental health issues and some patients' fears of sexual dysfunction.
Sandy Summers and Harry Jacobs Summers
- Published in print:
- 2014
- Published Online:
- November 2014
- ISBN:
- 9780199337064
- eISBN:
- 9780190221423
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199337064.003.0001
- Subject:
- Public Health and Epidemiology, Public Health
Nursing is a distinct scientific field and an autonomous profession. Nurses follow a unique, holistic practice model that emphasizes preventive care and overall well-being. Virtually all US nurses ...
More
Nursing is a distinct scientific field and an autonomous profession. Nurses follow a unique, holistic practice model that emphasizes preventive care and overall well-being. Virtually all US nurses are now educated at colleges by nursing scholars. Nurses report to senior nurses, not physicians. Today’s nurses practice in diverse settings, from major trauma centers to research institutions to rural clinics to disaster zones. These skilled professionals manage patient conditions, prevent deadly errors, teach and advocate for patients, and work for better health policies and systems. But patients die when nurses are understaffed or underempowered, and when nursing care is assigned to those who are not nurses, in order to cut costs. For many years the world has suffered from a deadly nursing shortage, both in terms of unfilled nursing positions and a failure to fund enough nursing positions. The current nursing shortage kills thousands, if not millions, of people every year.Less
Nursing is a distinct scientific field and an autonomous profession. Nurses follow a unique, holistic practice model that emphasizes preventive care and overall well-being. Virtually all US nurses are now educated at colleges by nursing scholars. Nurses report to senior nurses, not physicians. Today’s nurses practice in diverse settings, from major trauma centers to research institutions to rural clinics to disaster zones. These skilled professionals manage patient conditions, prevent deadly errors, teach and advocate for patients, and work for better health policies and systems. But patients die when nurses are understaffed or underempowered, and when nursing care is assigned to those who are not nurses, in order to cut costs. For many years the world has suffered from a deadly nursing shortage, both in terms of unfilled nursing positions and a failure to fund enough nursing positions. The current nursing shortage kills thousands, if not millions, of people every year.
Michaela Hesse and Lukas Radbruch
- Published in print:
- 2018
- Published Online:
- June 2018
- ISBN:
- 9780198788270
- eISBN:
- 9780191830211
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/oso/9780198788270.003.0006
- Subject:
- Palliative Care, Palliative Medicine Research, Palliative Medicine and Older People
German hospice care developed as a civil society movement in which volunteers were essential from the beginning. Palliative care was, however, led by a few pioneer physicians and started ...
More
German hospice care developed as a civil society movement in which volunteers were essential from the beginning. Palliative care was, however, led by a few pioneer physicians and started independently from hospices. This separate development is still visible with a clear distinction between palliative care units and inpatient hospices. Over the last two decades these two areas of care have moved more into the regular health care service. As a result volunteer services are increasingly subject to regulations. This also means that there is an increasing amount of competition and economic pressure. Developing trust and high transparency in the local and regional palliative care networks, and open and bilateral collaboration of specialist services with general practitioners (GPs) and other health care providers on the basic palliative care level are prerequisites of integrated palliative care. Ongoing development leads to changes in the patient groups that receive palliative care.Less
German hospice care developed as a civil society movement in which volunteers were essential from the beginning. Palliative care was, however, led by a few pioneer physicians and started independently from hospices. This separate development is still visible with a clear distinction between palliative care units and inpatient hospices. Over the last two decades these two areas of care have moved more into the regular health care service. As a result volunteer services are increasingly subject to regulations. This also means that there is an increasing amount of competition and economic pressure. Developing trust and high transparency in the local and regional palliative care networks, and open and bilateral collaboration of specialist services with general practitioners (GPs) and other health care providers on the basic palliative care level are prerequisites of integrated palliative care. Ongoing development leads to changes in the patient groups that receive palliative care.
