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Healthcare Activism, Marketization, and the Collective Good

Susi Geiger

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0001
Subject:
Business and Management, Public Management

This introductory chapter charts the book’s trajectory by engaging with three interlinked key dynamics of contemporary healthcare—marketization, digitalization, and individualization. It draws on ... More


Preventing “Exit,” Eliciting “Voice”: Patient, Participant, and Public Involvement as Invited Activism in Precision Medicine and Genomics Initiatives

Ilaria Galasso and Susi Geiger

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0002
Subject:
Business and Management, Public Management

This conceptual chapter evokes Albert Hirschman’s classic distinction between “exit” and “voice” to ascertain the potential for individuals to voice their concerns in the context of sharing data for ... More


Datafying the Patient Voice: The Making of Pervasive Infrastructures as Processes of Promise, Ruination, and Repair

Klaus Hoeyer and Henriette Langstrup

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0005
Subject:
Business and Management, Public Management

This chapter discusses the temporality and moral ambiguity of healthcare activism and state-sanctioned empowerment by providing examples from the infrastructuring of Danish healthcare. Denmark is a ... More


Initiators, Controllers, and Influencers: Enacting Patient Advocacy Roles in Cervical Cancer Screening Policy Practices

Lisa Lindén

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0006
Subject:
Business and Management, Public Management

This chapter looks at how patient advocates have intervened in cervical cancer policies to promote and enact the HPV test as the new “right tool for the job” in cervical cancer screening. By drawing ... More


“Please Don’t Put a Price on Our Lives”: Social Media and the Contestation of Value in Ireland’s Pricing of Orphan Drugs

Gillian Moran and Nicola Mountford

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0004
Subject:
Business and Management, Public Management

This chapter combines two streams of scholarship—social media marketing and influence, and market organization—to examine two case studies of patient activism in the context of Irish drug pricing. ... More


Heroes, Villains, and Victims: Tracing Breast Cancer Activist Movements

Mohammed Cheded and Gillian Hopkinson

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0007
Subject:
Business and Management, Public Management

This chapter explores the construction of dramaturgic characters in social movement narratives surrounding breast cancer. It contributes to developing a better understanding of the role of plotting ... More


The Fantastical Empowered Patient

Samantha D. Gottlieb

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0008
Subject:
Business and Management, Public Management

In the United States, clinical interventions and regulatory health institutions promote patient engagement and empowerment as a novel transformation in healthcare delivery, with the promise of ... More


War on Diseases: Patient Organizations’ Problematization and Exploration of Market Issues

Vololona Rabeharisoa and Liliana Doganova

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0003
Subject:
Business and Management, Public Management

Why and how do patient organizations intervene into debates on the pricing of drugs? This chapter refreshes our understanding of these two questions by situating patient organizations’ participation ... More


Markets, Morals, and the Collective Good after Covid-19

Barbara Prainsack and Hendrik Wagenaar

in Healthcare Activism: Markets, Morals, and the Collective Good

Published in print:
2021
Published Online:
October 2021
ISBN:
9780198865223
eISBN:
9780191897603
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865223.003.0009
Subject:
Business and Management, Public Management

The Covid-19 crisis has resulted in abrupt changes throughout society, including personal habits, work practices, government routines, as well as the structure and functioning of our political ... More


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