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Living with Embodied Omens

Margaret Lock

in The Alzheimer Conundrum: Entanglements of Dementia and Aging

Published in print:
2013
Published Online:
October 2017
ISBN:
9780691149783
eISBN:
9781400848461
Item type:
chapter
Publisher:
Princeton University Press
DOI:
10.23943/princeton/9780691149783.003.0008
Subject:
Anthropology, Social and Cultural Anthropology

This chapter begins with a brief consideration of the anthropological literature on divination. This is followed by a condensed discussion composed primarily of ethnographic research findings about ... More


Mobilizing Mutations: Human Genetics in the Age of Patient Advocacy

Daniel Navon

Published in print:
2019
Published Online:
May 2020
ISBN:
9780226638096
eISBN:
9780226638126
Item type:
book
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226638126.001.0001
Subject:
History, History of Science, Technology, and Medicine

Mobilizing Mutations shows how biomedical experts and patient advocates are using genetic testing to carve out new medical conditions and create powerful networks of research, care, and activism. For ... More


Individual Human Rights in Genetic Research: Blurring the Line between Collective and Individual Interests

Hélène Boussard

in New Technologies and Human Rights

Published in print:
2009
Published Online:
May 2009
ISBN:
9780199562572
eISBN:
9780191705328
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199562572.003.0008
Subject:
Law, Intellectual Property, IT, and Media Law, Human Rights and Immigration

This chapter describes how international human rights law has expanded in reaction to the growth of genetic health practices. It emphasizes that the so-called ‘geneticization’ of rights — that is, ... More


Treatment and Research Ethics

Jennifer Radden (ed.)

in The Philosophy of Psychiatry: A Companion

Published in print:
2004
Published Online:
January 2009
ISBN:
9780195149531
eISBN:
9780199870943
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195149531.003.0021
Subject:
Philosophy, Philosophy of Mind

This chapter analyzes the various ethical issues that arise in psychiatric treatment and research settings. These range from enduring concerns over compulsory treatment and the questions of consent ... More


Genomic Designation: How Genetics Creates New Medical Conditions

Daniel Navon

in Mobilizing Mutations: Human Genetics in the Age of Patient Advocacy

Published in print:
2019
Published Online:
May 2020
ISBN:
9780226638096
eISBN:
9780226638126
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226638126.003.0002
Subject:
History, History of Science, Technology, and Medicine

This chapter introduces the concept “genomic designation”: the practice of delineating and diagnosing medical conditions strictly according to genetic mutations. Genomic designation emerged in the ... More


The Loops That Tie: Mutations in the Trading Zone of Autism Genetics

Daniel Navon

in Mobilizing Mutations: Human Genetics in the Age of Patient Advocacy

Published in print:
2019
Published Online:
May 2020
ISBN:
9780226638096
eISBN:
9780226638126
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226638126.003.0005
Subject:
History, History of Science, Technology, and Medicine

The intertwined histories of autism and genomic designation show how genetics and classification can shape one another in unexpectedly dynamic ways. This chapter recounts the decades-long looping ... More


The Visibility of the Genetic Future

Helga Nowotny and Giuseppe Testa

in Naked Genes: Reinventing the Human in the Molecular Age

Published in print:
2011
Published Online:
January 2015
ISBN:
9780262014939
eISBN:
9780262295802
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262014939.003.0001
Subject:
Biology, Evolutionary Biology / Genetics

This chapter explores visibility as the defining feature enabled by the molecular gaze on life. Not only life is being recast through an ever expanding range of components (from genes to cells to ... More


Adoptee Vulnerability and Post-Adoptive Parental Obligation

Mianna Lotz

in Family-Making: Contemporary Ethical Challenges

Published in print:
2014
Published Online:
August 2014
ISBN:
9780199656066
eISBN:
9780191757099
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199656066.003.0012
Subject:
Philosophy, Moral Philosophy

This chapter focuses on special positive duties that adoptive parents have post-adoption. That these duties extend beyond general parental obligations is suggested by evidence that adoptees are ... More


Analogies to Adoption in Arguments Against Anonymous Gamete Donation: Geneticizing the Desire to Know

Kimberly Leighton

in Family-Making: Contemporary Ethical Challenges

Published in print:
2014
Published Online:
August 2014
ISBN:
9780199656066
eISBN:
9780191757099
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199656066.003.0014
Subject:
Philosophy, Moral Philosophy

In discussions of donor-assisted conception, a right to know one’s genetic ancestry has been invoked to capture the harm of anonymous gamete donation. Defenders of the view that someone who was ... More


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