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Brains, Pedigrees, and Promises: Lessons from the Politics of Autism Genetics

Chloe Silverman

in Understanding Autism: Parents, Doctors, and the History of a Disorder

Published in print:
2011
Published Online:
October 2017
ISBN:
9780691150468
eISBN:
9781400840397
Item type:
chapter
Publisher:
Princeton University Press
DOI:
10.23943/princeton/9780691150468.003.0006
Subject:
Anthropology, Social and Cultural Anthropology

This chapter tells the story of two parent groups, the Cure Autism Now Foundation (CAN) and the National Alliance for Autism Research (NAAR), and their efforts to promote genetic research on autism. ... More


Ethical Issues in Genetic Epidemiology

Laura M. Beskow and Wylie Burke

in Ethics and Epidemiology

Published in print:
2009
Published Online:
September 2009
ISBN:
9780195322934
eISBN:
9780199864416
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195322934.003.0009
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter examines three selected issues that, although not unique to genetics, are becoming increasingly important in genetic epidemiology: federal policies for widespread data sharing, the use ... More


Modern Family History Studies

Ezra Susser, Sharon Schwartz, Alfredo Morabia, and Evelyn J. Bromet

in Psychiatric Epidemiology: Searching for the Causes of Mental Disorders

Published in print:
2006
Published Online:
September 2009
ISBN:
9780195101812
eISBN:
9780199864096
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195101812.003.30
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Family history studies are now used for a much wider range of purposes than in the past. This chapter discusses their usefulness for refining phenotype definitions, targeting preventive ... More


The Limits of Consent: A socio-ethical approach to human subject research in medicine

Oonagh Corrigan, John McMillan, Kathleen Liddell, Martin Richards, and Charles Weijer (eds)

Published in print:
2009
Published Online:
September 2009
ISBN:
9780199231461
eISBN:
9780191723858
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199231461.001.0001
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

Since its inception as an international requirement to protect patients and healthy volunteers taking part in medical research, informed consent has become the primary consideration in research ... More


Individual Responses to Physical Activity: The Role of Genetics

Tuomo Rankinen and Claude Bouchard

in Epidemiologic Methods in Physical Activity Studies

Published in print:
2008
Published Online:
September 2009
ISBN:
9780195183009
eISBN:
9780199865116
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195183009.003.0005
Subject:
Public Health and Epidemiology, Public Health, Epidemiology

This chapter provides an overview of the basic study designs and research methods that can be used to investigate the genetic basis of human heterogeneity in the ability to benefit from a physically ... More


Response to Commentaries

Karen J. Maschke

in The Future of Bioethics: International Dialogues

Published in print:
2014
Published Online:
January 2014
ISBN:
9780199682676
eISBN:
9780191763168
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199682676.003.0036
Subject:
Philosophy, Moral Philosophy

An underlying rationale for limitations on individuals’ access to their genetic research results is the concern that individuals might use their genetic information in ways that could be harmful to ... More


Primary Topic Article: Genetic Research to Facilitate Personalized Medicine: Ethical and Policy Challenges

Karen J. Maschke

in The Future of Bioethics: International Dialogues

Published in print:
2014
Published Online:
January 2014
ISBN:
9780199682676
eISBN:
9780191763168
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199682676.003.0032
Subject:
Philosophy, Moral Philosophy

Several large-scale genetic research initiatives in the U.S. are specifically designed to return to participants some but not all of the genetic information obtained from analyses of their DNA. Two ... More


Written in Code: Diversity and the New Genetics

Belinda Bennett

in Law and Medicine: Current Legal Issues Volume 3

Published in print:
2000
Published Online:
March 2012
ISBN:
9780198299189
eISBN:
9780191685644
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198299189.003.0011
Subject:
Law, Philosophy of Law, Medical Law

Modern genetic research holds out the promise of a bold new future in which humanity has identified and conquered the genetic roots of many diseases. Genetic science also promises to shed light on ... More


Gene Therapy—Cure or Challenge?

Sheila A. M. McLean

in Law and Medicine: Current Legal Issues Volume 3

Published in print:
2000
Published Online:
March 2012
ISBN:
9780198299189
eISBN:
9780191685644
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198299189.003.0012
Subject:
Law, Philosophy of Law, Medical Law

This chapter addresses concerns regarding gene therapy. It has been suggested that we are bigger than our genetic inheritance — that genes may predict some, but not all, of what we are. Yet ... More


Emergent Forms of Un/Natural Life

Michael M. J. Fischer

in Without Nature?: A New Condition for Theology

Published in print:
2009
Published Online:
March 2011
ISBN:
9780823230693
eISBN:
9780823237227
Item type:
chapter
Publisher:
Fordham University Press
DOI:
10.5422/fso/9780823230693.003.0012
Subject:
Religion, Theology

This chapter delves into the political and social spaces emerging from and conditioning human experiences of the natural and of the self. Our institutions come to manifest ... More


Human Rights Concerns in Biotechnology

Sreenivasulu N.S.

in Law Relating to Biotechnology

Published in print:
2016
Published Online:
November 2016
ISBN:
9780199467488
eISBN:
9780199087358
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199467488.003.0006
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter highlights the human rights concerns in biotechnology. In this regard, responses from the governments of the US, India, and EU have been mapped. Various international human rights ... More


Cold War Sex War, Or the Other Being Inside: Burroughs, Paley, Plath, Hughes

Adam Piette

in The Literary Cold War, 1945 to Vietnam

Published in print:
2009
Published Online:
March 2012
ISBN:
9780748635276
eISBN:
9780748651771
Item type:
chapter
Publisher:
Edinburgh University Press
DOI:
10.3366/edinburgh/9780748635276.003.0005
Subject:
Literature, 20th-century and Contemporary Literature

This chapter discusses the conflicting views of male and female writers on the Cold War nuclear programme. It looks at the mothers's concern that the nuclear tests were releasing radioactivity into ... More


The Role of Zoos in the Conservation of West Indian Iguanas

Richard D. Hudson and Allison C. Alberts

in Iguanas: Biology and Conservation

Published in print:
2004
Published Online:
March 2012
ISBN:
9780520238541
eISBN:
9780520930117
Item type:
chapter
Publisher:
University of California Press
DOI:
10.1525/california/9780520238541.003.0022
Subject:
Biology, Animal Biology

This chapter highlights the contribution of zoos in the conservation of West Indian iguanas. Zoos play a major role in facilitating genetic research, financing and operating headstart facilities, and ... More


Biotechnology: The Science of Wonders

Sreenivasulu N.S.

in Law Relating to Biotechnology

Published in print:
2016
Published Online:
November 2016
ISBN:
9780199467488
eISBN:
9780199087358
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199467488.003.0001
Subject:
Law, Intellectual Property, IT, and Media Law

The first chapter defines the concept of biotechnology and provides an understanding of biotechnology with conceptual analysis and clarity. The nature of biotechnology is debated by dwelling on its ... More


Genetics

Andrea L. Glenn and Adrian Raine

in Psychopathy: An Introduction to Biological Findings and Their Implications

Published in print:
2014
Published Online:
March 2016
ISBN:
9780814777053
eISBN:
9780814777077
Item type:
chapter
Publisher:
NYU Press
DOI:
10.18574/nyu/9780814777053.003.0002
Subject:
Psychology, Developmental Psychology

This chapter presents Dr. Robert Hare's book, Without Conscience, in which he describes a set of female twins who drastically differ in personality. One twin grows up to be a lawyer with ambitious ... More


Ethical protection in research: including children in the debate

Trudy Goodenough, Emma Williamson, Julie Kent, and Richard Ashcroft

in Researchers and their 'subjects': Ethics, power, knowledge and consent

Published in print:
2004
Published Online:
March 2012
ISBN:
9781861345141
eISBN:
9781447303220
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861345141.003.0004
Subject:
Sociology, Social Research and Statistics

This chapter discusses participants' views of ethical protection in longitudinal epidemiological genetic research. The data used in this chapter was collected as part of the ‘Ethical Protection in ... More


Law and Medicine: Current Legal Issues Volume 3

Michael Freeman and Andrew Lewis (eds)

Published in print:
2000
Published Online:
March 2012
ISBN:
9780198299189
eISBN:
9780191685644
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198299189.001.0001
Subject:
Law, Philosophy of Law, Medical Law

This book, the third volume in the Current Legal Issues series, provides a treatment of an area that will stimulate and enlighten anyone interested in law and medicine. This book considers the many ... More


Selective Arrests, an Ever-Expanding DNA Forensic Database, and the Specter of an Early Twenty-First-Century Equivalent of Phrenology

Troy Duster

in Tactical Biopolitics: Art, Activism, and Technoscience

Published in print:
2008
Published Online:
August 2013
ISBN:
9780262042499
eISBN:
9780262271127
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262042499.003.0010
Subject:
Society and Culture, Media Studies

This chapter discusses the expansion of DNA databases. It begins by pointing out the systematic bias, by race, of a full range of behaviors displayed across the criminal justice system, from the ... More


Human Genetics

Antonio Regalado

in A Field Guide for Science Writers

Published in print:
2005
Published Online:
November 2020
ISBN:
9780195174991
eISBN:
9780197562239
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780195174991.003.0035
Subject:
Computer Science, History of Computer Science

Genetic research is moving faster than a nematode poked by a platinum needle. Every week, the scientific journals report a score of new gene discoveries ... More


The Biology of Behavior

Kevin Begos

in A Field Guide for Science Writers

Published in print:
2005
Published Online:
November 2020
ISBN:
9780195174991
eISBN:
9780197562239
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780195174991.003.0034
Subject:
Computer Science, History of Computer Science

In 1970, Nobel Prize winner William Shockley made a dramatic declaration: that the average IQs of black people were significantly lower than those of ... More


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