Jump to ContentJump to Main Navigation

You are looking at 1-15 of 15 items

  • Keywords: genetic privacy x
Clear All Modify Search

View:

The International Law of Genetic Discrimination: The Power of ‘Never Again’

Iulia Voina Motoc

in New Technologies and Human Rights

Published in print:
2009
Published Online:
May 2009
ISBN:
9780199562572
eISBN:
9780191705328
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199562572.003.0007
Subject:
Law, Intellectual Property, IT, and Media Law, Human Rights and Immigration

This chapter examines genetic discrimination through the lens of international law. The main questions asked are: What is the meaning of genetic discrimination? How can laws on genetic privacy ... More


Individual Human Rights in Genetic Research: Blurring the Line between Collective and Individual Interests

Hélène Boussard

in New Technologies and Human Rights

Published in print:
2009
Published Online:
May 2009
ISBN:
9780199562572
eISBN:
9780191705328
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199562572.003.0008
Subject:
Law, Intellectual Property, IT, and Media Law, Human Rights and Immigration

This chapter describes how international human rights law has expanded in reaction to the growth of genetic health practices. It emphasizes that the so-called ‘geneticization’ of rights — that is, ... More


Genetic Privacy and Other Interests in Biobanking: Conflict and Confluence

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0004
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter evaluates the concept of genetic privacy and its relationship with biobanking. Genetic privacy is simply a sub-concept of privacy referring to states of separation and exclusivity ... More


A Critical Analysis of the Efficacy of the GDPR as a Framework for the Protection of Genetic Privacy in Biobanking

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0010
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter presents a critical analysis of the efficacy of the General Data Protection Regulation (GDPR) as a framework for the protection of genetic privacy in biobanking. In this regard, it ... More


The Protection of Genetic Privacy in Biobanking at International Level: Establishing a Baseline Standard for Genetic Privacy Protection in Biobanking

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0005
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter sketches a baseline level of protection for genetic privacy rights in biobanking, against which legal systems, including the General Data Protection Regulation (GDPR), might be compared. ... More


Do We Need Data Protection at All?: Evaluating Protection for Genetic Privacy in Biobanking in Europe Excluding Data Protection

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0006
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter assesses whether there is any need to consider European data protection law as a framework for the protection of genetic privacy in biobanking in Europe at all. To answer the question, ... More


Conclusion

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0011
Subject:
Law, Intellectual Property, IT, and Media Law

This concluding chapter argues that European data protection law, under the General Data Protection Regulation (GDPR), can and ought to be looked at to play a central role in the protection of ... More


Introduction

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0001
Subject:
Law, Intellectual Property, IT, and Media Law

This introductory chapter provides an overview of the protection of genetic privacy in biobanking. The fact that genomic research relies on the processing of large quantities of individuals' genomic ... More


Protecting Genetic Privacy in Biobanking through Data Protection Law

Dara Hallinan

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.001.0001
Subject:
Law, Intellectual Property, IT, and Media Law

Biobanks are critical infrastructure for medical research. Biobanks, however, are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of ... More


Forensic Genetics, Ethics, Privacy, and Public Policy

Thomas J. White and Steven B. Lee

in Silent Witness: Forensic DNA Evidence in Criminal Investigations and Humanitarian Disasters

Published in print:
2020
Published Online:
November 2020
ISBN:
9780190909444
eISBN:
9780197539958
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190909444.003.0016
Subject:
Biology, Evolutionary Biology / Genetics

Chapter 15 covers various ethical issues associated with the use of DNA methods for forensic analyses and human rights investigations. Topics include informed consent and storage issues for samples ... More


Some Uncomfortable Ethical Dilemmas

Alan McHughen

in DNA Demystified: Unravelling the Double Helix

Published in print:
2020
Published Online:
July 2020
ISBN:
9780190092962
eISBN:
9780190092993
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190092962.003.0012
Subject:
Biology, Bioethics

This book has discussed the scientific aspects of DNA, physically, chemically, and biologically, and then the applications of knowledge of how DNA works. This chapter covers nonscientific ... More


Genetics

Daniel B. Sinclair

in Jewish Biomedical Law: Legal and Extra-Legal Dimensions

Published in print:
2003
Published Online:
March 2012
ISBN:
9780198268277
eISBN:
9780191683480
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198268277.003.0003
Subject:
Law, Medical Law

This chapter sketches an outline of a general halakhic approach to modern genetics and addresses a number of issues in somewhat greater detail. These issues include the abortion of genetically ... More


Privacy

Ronald M. Baecker

in Computers and Society: Modern Perspectives

Published in print:
2019
Published Online:
November 2020
ISBN:
9780198827085
eISBN:
9780191917318
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198827085.003.0015
Subject:
Computer Science, Human-Computer Interaction

Fears about loss of privacy in computerized societies have been central to dystopian literature. The issue has also concerned thoughtful computer scientists and lawyers since the 1960s. By then, ... More


Testing the GDPR in Relation to Biobanking: When Does the GDPR Apply to Biobanking?

Dara Hallinan

in Protecting Genetic Privacy in Biobanking through Data Protection Law

Published in print:
2021
Published Online:
April 2021
ISBN:
9780192896476
eISBN:
9780191918919
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780192896476.003.0007
Subject:
Law, Intellectual Property, IT, and Media Law

This chapter looks at when the General Data Protection Regulation (GDPR) applies, rationae materiae, to biobanking—only when the law applies to biobanking can it be expected to provide any protection ... More


Silent Witness: Forensic DNA Evidence in Criminal Investigations and Humanitarian Disasters

Henry Erlich, Eric Stover, and Thomas J. White (eds)

Published in print:
2020
Published Online:
November 2020
ISBN:
9780190909444
eISBN:
9780197539958
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780190909444.001.0001
Subject:
Biology, Evolutionary Biology / Genetics

Forensic DNA evidence has helped convict the guilty, exonerate the wrongfully convicted, identify victims of genocide, and reunite families torn apart by war and repressive regimes. Yet many of the ... More


View: