Jacqueline Worswick
- Published in print:
- 2000
- Published Online:
- November 2011
- ISBN:
- 9780192632357
- eISBN:
- 9780191730122
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780192632357.003.0011
- Subject:
- Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making
This chapter reviews the growth of children's hospices, reflects on their coming of age and the accompanying responsibilities and challenges, and considers some current and future issues in ...
More
This chapter reviews the growth of children's hospices, reflects on their coming of age and the accompanying responsibilities and challenges, and considers some current and future issues in children's hospice care. It considers unifying the approach and establishing networks, governance and funding, the human dimension, staff development, broadening the service, provision for young adults, family accommodation, sibling support, home care, education, evaluating the service, and the way ahead. Although the exact words chosen by individual hospices to describe their objectives vary – each hospice retains its own individuality and in no way does communality of purpose mean that children's hospices constitute a ‘chain’ – the philosophy which sustains them all remains essentially the same philosophy as that on which Helen House was founded.Less
This chapter reviews the growth of children's hospices, reflects on their coming of age and the accompanying responsibilities and challenges, and considers some current and future issues in children's hospice care. It considers unifying the approach and establishing networks, governance and funding, the human dimension, staff development, broadening the service, provision for young adults, family accommodation, sibling support, home care, education, evaluating the service, and the way ahead. Although the exact words chosen by individual hospices to describe their objectives vary – each hospice retains its own individuality and in no way does communality of purpose mean that children's hospices constitute a ‘chain’ – the philosophy which sustains them all remains essentially the same philosophy as that on which Helen House was founded.
Jacqueline Worswick
- Published in print:
- 2000
- Published Online:
- November 2011
- ISBN:
- 9780192632357
- eISBN:
- 9780191730122
- Item type:
- book
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780192632357.001.0001
- Subject:
- Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making
The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established, and the growth in the number of children's hospices has seen ...
More
The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established, and the growth in the number of children's hospices has seen corresponding important developments in the field of paediatric palliative care. This book provides an account of how Helen House came into being. It records the events surrounding the foundation of the hospice and how it stemmed directly from what was learnt from the events following the sudden illness of the author's eldest daughter Helen, after whom the hospice was named. The book sets out the philosophy that underpinned the hospice, which was taken up as the guiding philosophy of children's hospice care. It describes the hospice's operational framework and details the service provided by Helen House. The book provides valuable insight into the needs of the families who use hospice services and touches both on the difficulties they face caring, often over a long period of time, for a child with a life-limiting illness, and on the role and attitudes of professionals and indeed of the public at large. In this new edition, an additional chapter reviews the growth of children's hospices and reflects on the challenges they face in their maturity. It considers the development of children's hospice care in relation to wider service provision and examines current and future issues surrounding the care of children with life-limiting illness.Less
The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established, and the growth in the number of children's hospices has seen corresponding important developments in the field of paediatric palliative care. This book provides an account of how Helen House came into being. It records the events surrounding the foundation of the hospice and how it stemmed directly from what was learnt from the events following the sudden illness of the author's eldest daughter Helen, after whom the hospice was named. The book sets out the philosophy that underpinned the hospice, which was taken up as the guiding philosophy of children's hospice care. It describes the hospice's operational framework and details the service provided by Helen House. The book provides valuable insight into the needs of the families who use hospice services and touches both on the difficulties they face caring, often over a long period of time, for a child with a life-limiting illness, and on the role and attitudes of professionals and indeed of the public at large. In this new edition, an additional chapter reviews the growth of children's hospices and reflects on the challenges they face in their maturity. It considers the development of children's hospice care in relation to wider service provision and examines current and future issues surrounding the care of children with life-limiting illness.
Ros Scott
- Published in print:
- 2009
- Published Online:
- November 2011
- ISBN:
- 9780199545827
- eISBN:
- 9780191730429
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780199545827.003.0012
- Subject:
- Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research
This chapter discusses the volunteers who work in children's hospices. It includes an introduction to a children's hospice, the four groups of children who stay in the hospice, the environment of ...
More
This chapter discusses the volunteers who work in children's hospices. It includes an introduction to a children's hospice, the four groups of children who stay in the hospice, the environment of these hospices, and the involvement of volunteers in these hospices. It also looks at how these volunteers are selected, from the interview to the training courses.Less
This chapter discusses the volunteers who work in children's hospices. It includes an introduction to a children's hospice, the four groups of children who stay in the hospice, the environment of these hospices, and the involvement of volunteers in these hospices. It also looks at how these volunteers are selected, from the interview to the training courses.
Jacqueline Worswick
- Published in print:
- 2000
- Published Online:
- November 2011
- ISBN:
- 9780192632357
- eISBN:
- 9780191730122
- Item type:
- chapter
- Publisher:
- Oxford University Press
- DOI:
- 10.1093/acprof:oso/9780192632357.003.0005
- Subject:
- Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making
The first meeting on 28th March 1980 and a subsequent one two months later laid the foundations for the translation of an idea into reality. The people who attended those early were a committed ...
More
The first meeting on 28th March 1980 and a subsequent one two months later laid the foundations for the translation of an idea into reality. The people who attended those early were a committed group. The discussions had a very clear focus. Frances has often commented on Helen's vital role in our the group's deliberations; Helen, the type of support and care Helen needed and, above all, the quality of care they wanted for Helen at all times, whether at home or elsewhere, provided the model for what a purpose-built children's hospice would offer other children and their families. The people present at that first meeting in March 1980 were: Mother Frances Dominica, Dr Roger Burne (GP), John Bicknell (Architect), Derreck Shorten (Architectural Consultant), Bronwen Bennett (Physiotherapist), Vivien Pritchard (Nursing Officer at Sir Michael Sobell House), Sister Margaret (Society of All Saints), and Richard Worswick (Helen's father).Less
The first meeting on 28th March 1980 and a subsequent one two months later laid the foundations for the translation of an idea into reality. The people who attended those early were a committed group. The discussions had a very clear focus. Frances has often commented on Helen's vital role in our the group's deliberations; Helen, the type of support and care Helen needed and, above all, the quality of care they wanted for Helen at all times, whether at home or elsewhere, provided the model for what a purpose-built children's hospice would offer other children and their families. The people present at that first meeting in March 1980 were: Mother Frances Dominica, Dr Roger Burne (GP), John Bicknell (Architect), Derreck Shorten (Architectural Consultant), Bronwen Bennett (Physiotherapist), Vivien Pritchard (Nursing Officer at Sir Michael Sobell House), Sister Margaret (Society of All Saints), and Richard Worswick (Helen's father).
