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How to gain research ethics approval

Peter Speck

in Research Methods in Palliative Care

Published in print:
2007
Published Online:
November 2011
ISBN:
9780198530251
eISBN:
9780191729980
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198530251.003.0017
Subject:
Palliative Care, Palliative Medicine Research, Patient Care and End-of-Life Decision Making

This chapter gives advice on how to obtain research ethics approval. It begins with an introduction to the UK Research Ethics Committees, which was started in 1968 and is now responsible for ... More


The Misshapen Ideology of the IRB System

Carl E. Schneider

in The Censor's Hand: The Misregulation of Human-Subject Research

Published in print:
2015
Published Online:
September 2015
ISBN:
9780262028912
eISBN:
9780262328784
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262028912.003.0004
Subject:
Biology, Bioethics

Good regulation comes from good guidance. IRBs need a coherent and legible ethics but get three principles – respect for persons, justice, and beneficence. A workable ethics is unachievable because ... More


Back to the Future? Examining the Institute of Medicine's Recommendations to Loosen Restrictions on Using Prisoners as Human Subjects1

Osagie K. Obasogie

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0009
Subject:
Biology, Bioethics

There have been notable discussions within scientific literature, bioethics scholarship, and the popular press regarding the Institute of Medicine’s 2006 recommendations to the Department of Health ... More


Outsourcing Ethical Obligations: Should the Revised Common Rule Address the Responsibilities of Investigators and Sponsors?

Seema K. Shah

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0012
Subject:
Biology, Bioethics

The Common Rule sets up a division of moral labor in research. It implies that investigators and sponsors can outsource their ethical obligations to IRBs and participants. This ethical outsourcing ... More


Making the decision about enrolment in a randomised controlled trial

Tracey J. Stone

in Researchers and their 'subjects': Ethics, power, knowledge and consent

Published in print:
2004
Published Online:
March 2012
ISBN:
9781861345141
eISBN:
9781447303220
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861345141.003.0003
Subject:
Sociology, Social Research and Statistics

This chapter describes the decision making of a purposively sampled group of oncology patients about taking part in a randomised controlled trial (RCT). The data presented in this chapter was ... More


Research with psychiatric patients: knowing their own minds?

Sarah Nelson

in Researchers and their 'subjects': Ethics, power, knowledge and consent

Published in print:
2004
Published Online:
March 2012
ISBN:
9781861345141
eISBN:
9781447303220
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861345141.003.0006
Subject:
Sociology, Social Research and Statistics

The Beyond Trauma research project aimed to improve mental health services for female survivors of childhood sexual abuse. It explored their experiences of services, and their views on how these ... More


Trust in the system: Research Ethics Committees and the regulation of biomedical research

Adam Hedgecoe

Published in print:
2020
Published Online:
September 2021
ISBN:
9781526152916
eISBN:
9781526161024
Item type:
book
Publisher:
Manchester University Press
DOI:
10.7765/9781526152923
Subject:
Sociology, Health, Illness, and Medicine

This book explores the nature of decision making in one of the most crucial – yet also the most understudied – aspects of the regulatory system around biomedical research: research ethics committees. ... More


Conclusion: Death and Other Frontiers

Vanessa Heggie

in Higher and Colder: A History of Extreme Physiology and Exploration

Published in print:
2019
Published Online:
May 2020
ISBN:
9780226650883
eISBN:
9780226650913
Item type:
chapter
Publisher:
University of Chicago Press
DOI:
10.7208/chicago/9780226650913.003.0006
Subject:
History, History of Science, Technology, and Medicine

This chapter considers the ethical challenges of experimentation in expeditionary biomedical science. Looking at the bodies used in such experimental work—often including those of indigenous peoples ... More


Classifying Military Personnel as a Vulnerable Population

Efthimios Parasidis

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0007
Subject:
Biology, Bioethics

The U.S. military has a long and checkered history of research involving human subjects. Although federal guidelines and military directives provide service members with procedural safeguards, the ... More


What's Right about the “Medical Model” in Human Subjects Research Regulation

Heidi Li Feldman

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0025
Subject:
Biology, Bioethics

The basic tenet that guides, and should guide, research on human subjects is the preservation of the autonomy of the subject. Meaningful informed consent operationalizes this tenet, which should ... More


Randomized Control Trials in the Field of Development: A Critical Perspective

Florent Bédécarrats, Isabelle Guérin, and François Roubaud (eds)

Published in print:
2020
Published Online:
October 2020
ISBN:
9780198865360
eISBN:
9780191898266
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/oso/9780198865360.001.0001
Subject:
Economics and Finance, Financial Economics, Development, Growth, and Environmental

In October 2019, Abhijit Banerjee, Esther Duflo, and Michael Kremer jointly won the 51st Sveriges Riksbank Prize in Economic Sciences in Memory of Alfred Nobel "for their experimental approach to ... More


Researching end of life in old age: ethical challenges

Ailsa Cameron, Liz Lloyd, Naomi Kent, and Pat Anderson

in Researchers and their 'subjects': Ethics, power, knowledge and consent

Published in print:
2004
Published Online:
March 2012
ISBN:
9781861345141
eISBN:
9781447303220
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781861345141.003.0007
Subject:
Sociology, Social Research and Statistics

One of the ethical dilemmas facing researchers and social researchers is the most appropriate way of researching the relationship between old age and death. This chapter reviews the ethical issues ... More


Value for money? The politics of contract research

Paul Senior

in Values in criminology and community justice

Published in print:
2013
Published Online:
May 2014
ISBN:
9781447300359
eISBN:
9781447311706
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447300359.003.0021
Subject:
Social Work, Crime and Justice

This chapter explores the minutiae of contract research on criminal justice matters which operate in a highly charged policy context. Maintaining the integrity of the research is challenged by the ... More


The Caring Adult Role and Youth Research

Katherine Irwin and Karen Umemoto

in Jacked Up and Unjust: Pacific is lander Teens Confront Violent Legacies

Published in print:
2016
Published Online:
May 2017
ISBN:
9780520283022
eISBN:
9780520958883
Item type:
chapter
Publisher:
University of California Press
DOI:
10.1525/california/9780520283022.003.0003
Subject:
Sociology, Law, Crime and Deviance

In chapter two, we review our research methods and explain the choices we made considering that the juveniles in this study were a vulnerable population. While we wanted to gain an intimate knowledge ... More


On the Move: Work and Mobility in Newfoundland

George Gmelch and Sharon Bohn Gmelch

in In the Field: Life and Work in Cultural Anthropology

Published in print:
2018
Published Online:
January 2019
ISBN:
9780520289611
eISBN:
9780520964211
Item type:
chapter
Publisher:
University of California Press
DOI:
10.1525/california/9780520289611.003.0006
Subject:
Anthropology, Anthropology, Theory and Practice

In a five-year interdisciplinary team research project on the migration and mobility patterns of rural Newfoundlanders, the author learns the strengths and drawbacks of collaborative research. In ... More


Conclusion

Gilles Carbonnier

in Humanitarian Economics: War, Disaster, and the Global Aid Market

Published in print:
2016
Published Online:
September 2016
ISBN:
9780190491543
eISBN:
9780190638467
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780190491543.003.0009
Subject:
Economics and Finance, Development, Growth, and Environmental

The concluding chapter highlights the largely untapped potential of humanitarian economics. This relatively new field of study can enhance the understanding of humanitarian crises among researchers, ... More


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