Alexander Morgan Capron
- Published in print:
- 2014
- Published Online:
- January 2015
- ISBN:
- 9780262027465
- eISBN:
- 9780262320825
- Item type:
- chapter
- Publisher:
- The MIT Press
- DOI:
- 10.7551/mitpress/9780262027465.003.0013
- Subject:
- Biology, Bioethics
Informed consent is usually thought of as the ethical cornerstone of research with human beings yet over the past thirty years a largegap has opened between informed consent as an object of ...
More
Informed consent is usually thought of as the ethical cornerstone of research with human beings yet over the past thirty years a largegap has opened between informed consent as an object of veneration and its actual role as a governing concept in research with human subjects. This chapter argues that our failure to recognize that gap—and to make necessary policy adjustments—should be on the minds of the drafters of any proposal to reframe the federal regulations for research with human beings.Such attention would be particularly fitting because the federal rules themselves bear much of the responsibility for the diminishing importance of informed consent in research.Less
Informed consent is usually thought of as the ethical cornerstone of research with human beings yet over the past thirty years a largegap has opened between informed consent as an object of veneration and its actual role as a governing concept in research with human subjects. This chapter argues that our failure to recognize that gap—and to make necessary policy adjustments—should be on the minds of the drafters of any proposal to reframe the federal regulations for research with human beings.Such attention would be particularly fitting because the federal rules themselves bear much of the responsibility for the diminishing importance of informed consent in research.
Andy Dunlap
- Published in print:
- 2015
- Published Online:
- September 2015
- ISBN:
- 9781447309673
- eISBN:
- 9781447313526
- Item type:
- chapter
- Publisher:
- Policy Press
- DOI:
- 10.1332/policypress/9781447309673.003.0015
- Subject:
- Sociology, Gender and Sexuality
In order to better understand the experiences of Lesbian, Gay, Bisexual and Trans (LGBT) people within the health care and social services systems, researchers must overcome important difficulties ...
More
In order to better understand the experiences of Lesbian, Gay, Bisexual and Trans (LGBT) people within the health care and social services systems, researchers must overcome important difficulties inherent in trying to query these populations. This chapter addresses some of the challenges associated with internet based survey research with LGBT people. One of the difficulties in surveying these populations is establishing a sampling frame from which to draw. How many LGBT people are there? How should the researcher define sexual orientation? These difficulties are only compounded when researchers begin to examine international experiences of LGBT people. A dissertation project serves as an example in this discussion which was carefully constructed to maximize participation by using a Tailored Design Method and outing the researcher as a member of the LGBT community. A large quantitative sample (n = 1131) and a large qualitative sample (n = 870) were generated. This chapter discusses specific strategies for generating large and diverse samples by exploring both strengths and limitations of this research project. Topics include: outing the researcher; working with gatekeepers; framing the call for participation; and navigating heteronormative IRB systems.Less
In order to better understand the experiences of Lesbian, Gay, Bisexual and Trans (LGBT) people within the health care and social services systems, researchers must overcome important difficulties inherent in trying to query these populations. This chapter addresses some of the challenges associated with internet based survey research with LGBT people. One of the difficulties in surveying these populations is establishing a sampling frame from which to draw. How many LGBT people are there? How should the researcher define sexual orientation? These difficulties are only compounded when researchers begin to examine international experiences of LGBT people. A dissertation project serves as an example in this discussion which was carefully constructed to maximize participation by using a Tailored Design Method and outing the researcher as a member of the LGBT community. A large quantitative sample (n = 1131) and a large qualitative sample (n = 870) were generated. This chapter discusses specific strategies for generating large and diverse samples by exploring both strengths and limitations of this research project. Topics include: outing the researcher; working with gatekeepers; framing the call for participation; and navigating heteronormative IRB systems.
