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Children in clinical trials in Ireland: addressing the gaps in the legal framework

Katherine Wade

in Ethical and Legal Debates In Irish Healthcare: Confronting complexities

Published in print:
2016
Published Online:
May 2016
ISBN:
9780719099465
eISBN:
9781526104410
Item type:
chapter
Publisher:
Manchester University Press
DOI:
10.7228/manchester/9780719099465.003.0012
Subject:
Sociology, Culture

This chapter focuses on two key areas which require further clarity and elaboration in the context of research with children, namely, the requirements for research which does not offer the child the ... More


Comparative Effectiveness Research: Evidence, Medicine, and Policy

Carol M. Ashton and Nelda P. Wray

Published in print:
2013
Published Online:
September 2013
ISBN:
9780199968565
eISBN:
9780199346080
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199968565.001.0001
Subject:
Public Health and Epidemiology, Public Health

Americans like to believe that the medical care we get from our doctors is based on solid scientific evidence. We hear often that American medical care and medical research are the best in the world. ... More


Exploiting Vulnerable Citizens: Drug Testing and the Mentally Ill

Carl Elliott and Emma Bedor Hiland

in Biocitizenship: The Politics of Bodies, Governance, and Power

Published in print:
2018
Published Online:
January 2019
ISBN:
9781479845194
eISBN:
9781479846306
Item type:
chapter
Publisher:
NYU Press
DOI:
10.18574/nyu/9781479845194.003.0007
Subject:
Sociology, Health, Illness, and Medicine

The mentally ill are a highly vulnerable population, but remain remarkably easy for pharmaceutical researchers to exploit. When the US Congress passed the National Research Act in 1974, it was ... More


The Rare Diseases Clinical Research Network and the Urea Cycle Disorders Consortium as Nested Knowledge Commons

Can Cui

Katherine J. Strandburg and Brett M. Frischmann (eds)

in Governing Knowledge Commons

Published in print:
2014
Published Online:
November 2014
ISBN:
9780199972036
eISBN:
9780199361908
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199972036.003.0006
Subject:
Law, Intellectual Property, IT, and Media Law, Environmental and Energy Law

Information sharing, collaboration, and community building among researchers, doctors, and patients are critical to rare disease research. It is very difficult to do clinical research on rare ... More


Democratic Deliberation and the Ethical Review of Human Subjects Research

Govind Persad

in Human Subjects Research Regulation: Perspectives on the Future

Published in print:
2014
Published Online:
January 2015
ISBN:
9780262027465
eISBN:
9780262320825
Item type:
chapter
Publisher:
The MIT Press
DOI:
10.7551/mitpress/9780262027465.003.0014
Subject:
Biology, Bioethics

This chapter explains the concept of democratic deliberation and considers its implications for ethical review of human subjects research. Democratic deliberation is an ethical principle relatively ... More


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