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This chapter examines the “epidemic” of disability in post-Soviet Ukraine, and more specifically how state laws on the social protection of Chernobyl sufferers have turned suffering and disability into a resource affecting family, work, and social identity. It shows how the line between sickness and health becomes a highly politicized one as traditional forms of Soviet social organization, particularly the labor collective, are being replaced by a new architecture of welfare claims, privileges, laws, and identities. It also discusses the role of the Exclusion Zone in an informal Soviet economy and capitalist transition, as well as the ways in which workers micromanage inflation with a sick role sociality in their everyday lives. Finally, it considers the establishment of medical-labor committees to handle the growing number of disability claims related to the Chernobyl explosion and highlights a city of sufferers where so many individuals have gained their illnesses for life.

This book examines how government and scientific interventions have recast the Chernobyl aftermath as a complex political and health experience with its own bureaucratic and legal ramifications. In Ukraine, a decade after the Chernobyl disaster, waves of citizens poured into medical offices for care and compensation. Their “idiosyncratic” diseases would now encode different kinds of treatment discriminations and different kinds of neglect. The book shows how the Chernobyl explosion has been shaped as a tekhnohenna katastrofa, or technogenic catastrophe, and how Ukraine's response to the disaster combines humanism with strategies of governance and state building, market strategies with forms of economic and political corruption. The book focuses on the emergence of a collective and individual survival strategy known as biological citizenship, which it argues reflects a failure of politics and science to account for human welfare, particularly the welfare of Chernobyl sufferers.

This chapter explores some of the prehistory of reception of the Chernobyl disaster in various aspects of Soviet-era life from the perspective of individuals and families living outside state-designated zones. The discussion focuses on events in a time when bureaucratic lines between sufferers and nonsufferers were just beginning to be drawn, and when other informal structures of accountability regarding state-related abuses were in place. From the perspective of one family, the chapter shows how individuals reached the limits of their ability to reason, narrate, and project futures in the context of an invisible nuclear hazard. It explains how life narratives and family histories reflected a vexed and complex history of Ukraine, but also how these histories informed interpretations of the Chernobyl experience.

This chapter examines how the self and social identity have been transformed in post-Soviet Ukraine within the legal and medical context of claiming illness from radiation dose exposure. It shows how the political and bureaucratic aspects of Chernobyl pervaded sufferers' lives, bringing to the fore the complexity of life's disruption by unstable parental and marital relations, unpredictable physical symptoms and emotional stress, patterns of hospitalization, unemployment, and bureaucratic transactions. The chapter tells the story of an elderly couple, using the concept of lichnost', or personhood, to shed light on some of the social and personal dynamics that influenced their life. It explains how the husband's pains, truths, instincts, and acts became key components in realization of his biological citizenship. It also considers how the deep intrusion of illness into personal lives fostered a type of violence that went beyond the line of what could be policed.

This chapter summarizes the book's main findings and their implications. It describes the Chernobyl aftermath as a prism that reflects, contains, and reconfigures the vexed political-economic, scientific, legal, and social circumstances in post-Soviet Ukraine. It emphasizes the disharmony among lawmakers, radiation scientists, health professionals, and sufferers as they stood along the continuum of knowledge production, power, moral sensibility, and self-disclosure. It considers how the radiation research process facilitated the naturalization of illnesses in bodies as a matter of “social health.” The chapter also discusses a number of ethical issues that bear on the fate of Chernobyl sufferers; for example, how future changes in social and economic contexts will affect the legitimacy of compensation mechanisms and categories of suffering. Biological citizenship, it argues, represents a complex intersection of social institutions and the intense vulnerabilities of populations exposed to the determinations of the international political economy.