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Contested Illnesses
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Contested Illnesses: Citizens, Science, and Health Social Movements

Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski

Abstract

The politics and science of health and disease remain contested terrain among scientists, health practitioners, policy makers, industry, communities, and the public. Stakeholders in disputes about illnesses or conditions disagree over their fundamental causes as well as how they should be treated and prevented. This thought-provoking book crosses disciplinary boundaries by engaging with both public health policy and social science, asserting that science, activism, and policy are not separate issues and showing how the contribution of environmental factors in disease is often overlooked.

Keywords: health, disease, illness, public health policy, social science, environmental factors

Bibliographic Information

Print publication date: 2011 Print ISBN-13: 9780520270206
Published to University Press Scholarship Online: January 2017 DOI:10.1525/california/9780520270206.001.0001

Authors

Affiliations are at time of print publication.

Phil Brown, editor
Brown University

Rachel Morello-Frosch, editor
University of California, Berkeley

Stephen Zavestoski, editor
University of San Francisco

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Contents

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Part One Setting the Stage: Introduction, Theory, Methods

1 Introduction

Rachel Morello-Frosch, Phil Brown, and Stephen Zavestoski

2 Embodied Health Movements

Phil Brown, Rachel Morello-Frosch, Stephen Zavestoski, Sabrina McCormick, Brian Mayer, Rebecca Gasior Altman, Crystal Adams, Elizabeth Hoover, and Ruth Simpson

4 Getting Into the Field

Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski

5 Environmental Justice and the Precautionary Principle

Rachel Morello-Frosch, Manuel Pastor, and James Sadd

Part Two Working in the Environmental Health Field: Ethnographic Studies

6 A Narrowing Gulf of Difference?

Phil Brown, Stephen Zavestoski, Alissa Cordner, Sabrina McCormick, Joshua Mandelbaum, Theo Luebke, and Meadow Linder

7 The Health Politics of Asthma

Phil Brown, Brian Mayer, Stephen Zavestoski, Theo Luebke, Joshua Mandelbaum, Sabrina McCormick, and Mercedes Lyson

8 Pollution Comes Home and Gets Personal

Rebecca Gasior Altman, Rachel Morello-Frosch, Julia Green Brody, Ruthann A. Rudel, Phil Brown, and Mara Averick

9 The Personal Is Scientific, the Scientific Is Political

Sabrina McCormick, Phil Brown, Stephen Zavestoski, and Alissa Cordner

10 School Custodians and Green Cleaners

Laura Senier, Brian Mayer, Phil Brown, and Rachel Morello-Frosch

11 Labor-Environmental Coalition Formation

Brian Mayer, Phil Brown, and Rachel Morello-Frosch

12 The Brown Superfund Research Program

Laura Senier, Benjamin Hudson, Sarah Fort, Elizabeth Hoover, Rebecca Tillson, and Phil Brown

Part Three Ethical Considerations

13 Toxic Ignorance and the Right to Know

Rachel Morello-Frosch, Julia Green Brody, Phil Brown, Rebecca Gasior Altman, Ruthann A. Rudel, Carla Pérez, and Alison Cohen

14 IRB Challenges in Community-Based Participatory Research on Human Exposure to Environmental Toxics

Phil Brown, Rachel Morello-Frosch, Julia Green Brody, Rebecca Gasior Altman, Ruthann A. Rudel, Laura Senier, Carla Pérez, and Ruth Simpson

15 Conclusion

Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski