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Ethics of CareCritical advances in international perspective$
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Tula Brannelly, Lizzie Ward, and Nicki Ward

Print publication date: 2015

Print ISBN-13: 9781447316510

Published to University Press Scholarship Online: May 2016

DOI: 10.1332/policypress/9781447316510.001.0001

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date: 18 August 2017

HIV care and interdependence in Tanzania and Uganda

HIV care and interdependence in Tanzania and Uganda

Chapter:
(p.151) Twelve HIV care and interdependence in Tanzania and Uganda
Source:
Ethics of Care
Author(s):

Ruth Evans

Agnes Atim

Publisher:
Policy Press
DOI:10.1332/policypress/9781447316510.003.0012

Within many communities in East Africa, people living with HIV are increasingly involved in delivering home-based care and healthcare for family members and peers. Such interdependent caring relations blur conventional boundaries between ‘care-givers’ and ‘care-recipients’, and constructions of 'service users' as dependent, passive recipients of healthcare. The participation of people living with HIV in healthcare provision, home-based care and peer support groups can enhance ‘relational autonomy’ for both care-givers and care-recipients, although such initiatives often play out in highly gendered ways. The care and support of people living with HIV, particularly the emotion work of caring, however, continues to be associated with women's and girls' assumed 'natural' nurturing roles and has been largely devalued and overlooked in HIV policy and practice to date.

Keywords:   hiv care and support, people living with hiv, plha, service users, participation in healthcare, east Africa

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