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Chronic and Terminal Illness: new perspectives on caring and carers

Sheila Payne and Caroline Ellis-Hill (eds)

Published in print:
2001
Published Online:
November 2011
ISBN:
9780192631671
eISBN:
9780191730191
Item type:
book
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192631671.001.0001
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology

Most chronically and terminally ill patients are cared for in their own homes by family and friends, rather than in hospitals or hospices. These carers are an invaluable free resource and there is an ... More


Suffering in Chronic Illness

Eric J. Cassell

in The Nature of Suffering and the Goals of Medicine

Published in print:
2004
Published Online:
November 2011
ISBN:
9780195156164
eISBN:
9780199999880
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195156164.003.0004
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine and Older People

This chapter discusses suffering in chronic illness. It starts with a definition of chronic illness and its symptoms. The chapter discusses one of the alterations produced by chronic illness, which ... More


Caring and identity: the experience of spouses in stroke and other chronic neurological conditions

Caroline Ellis-Hill

in Chronic and Terminal Illness: new perspectives on caring and carers

Published in print:
2001
Published Online:
November 2011
ISBN:
9780192631671
eISBN:
9780191730191
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192631671.003.0003
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology

This chapter explores the issues of caring and identity in the area of acquired chronic neurological illness. With the advent of technological advances, many people are now living with patients with ... More


Rehabilitative Missions

Eileen Boris and Jennifer Klein

in Caring for America: Home Health Workers in the Shadow of the Welfare State

Published in print:
2012
Published Online:
May 2012
ISBN:
9780195329117
eISBN:
9780199949496
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195329117.003.0002
Subject:
Political Science, American Politics

This chapter traces the promotion of home care in the two decades after WWII, looking at social welfare non-profits, government, and pioneering hospital provision of home care. It demonstrates how ... More


Illness in the Time of Disney

David B. Morris

in Illness and Culture in the Postmodern Age

Published in print:
1998
Published Online:
May 2012
ISBN:
9780520208698
eISBN:
9780520926240
Item type:
chapter
Publisher:
University of California Press
DOI:
10.1525/california/9780520208698.003.0009
Subject:
Anthropology, Medical Anthropology

Disneyland (1955) and Walt Disney World (1971) are significant postmodern inventions that Americans tend to see as a national tradition. No one would fault Disney for excluding chronic illness and ... More


The Social Course of Epilepsy: Chronic Illness as Social Experience in Interior China

Arthur Kleinman

in Writing at the Margin: Discourse Between Anthropology and Medicine

Published in print:
1997
Published Online:
May 2012
ISBN:
9780520209657
eISBN:
9780520919471
Item type:
chapter
Publisher:
University of California Press
DOI:
10.1525/california/9780520209657.003.0007
Subject:
Anthropology, Medical Anthropology

This chapter discusses epilepsy and chronic illness as social experience in interior China, first addressing the fact that epilepsy is a relatively new focus for research in international health. It ... More


Coping with Pediatric Cancer: Theoretical and Research Perspectives

David J. Bearison and Raymond K. Mulhern

in Pediatric Psychooncology: Psychological Perspectives on Children with Cancer

Published in print:
1994
Published Online:
November 2011
ISBN:
9780195079319
eISBN:
9780199999804
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195079319.003.0003
Subject:
Palliative Care, Paediatric Palliative Medicine, Patient Care and End-of-Life Decision Making

This chapter discusses how children who have cancer and their families cope with and adjust to the experience. It considers the problems in defining adequate coping and adjustment reactions given the ... More


Challenging the Status Quo

Leonard A. Jason

in Principles of Social Change

Published in print:
2013
Published Online:
January 2013
ISBN:
9780199841851
eISBN:
9780199315901
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199841851.003.0002
Subject:
Psychology, Social Psychology

In Chapter 2, I address the entrenched powers in a community or organization that erect obstacles to enduring change and their relationship to the second, and in many ways, most critical strategy for ... More


The patient and family

Lorna Butler

in Supportive Care for the Urology Patient

Published in print:
2005
Published Online:
November 2011
ISBN:
9780198529415
eISBN:
9780191730344
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780198529415.003.0006
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Pain Management and Palliative Pharmacology

This chapter explores the state of knowledge that supports health professionals in broadening their interpretation of care delivery to include psychosocial challenges, reviews the most recent ... More


Challenging the Stigma of Mental Illness through New Therapeutic Approaches

Vicky Long

in Destigmatising mental illness?: Professional politics and public education in Britain, 1870-1970

Published in print:
2014
Published Online:
May 2015
ISBN:
9780719085819
eISBN:
9781781706404
Item type:
chapter
Publisher:
Manchester University Press
DOI:
10.7228/manchester/9780719085819.003.0004
Subject:
History, History of Science, Technology, and Medicine

Tracing innovations in mental healthcare policy and practice in Britain from the late nineteenth century through to the 1970s, this chapter reflects upon the intimate relationship between ... More


Implications of the findings for the health services

Nick Bosanquet and Chris Salisbury

in Providing a palliative care service: towards an evidence base

Published in print:
1999
Published Online:
November 2011
ISBN:
9780192629913
eISBN:
9780191730153
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780192629913.003.0016
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine Research

This chapter discusses the conclusions derived from the review presented in this book. It concludes that the findings of the review are positive. The review has introduced a new kind of care and has ... More


Spousal Support and Dyadic Coping in Times of Stress

Anita DeLongis, Susan Holtzman, Eli Puterman, and Mark Lam

in Support Processes in Intimate Relationships

Published in print:
2010
Published Online:
September 2010
ISBN:
9780195380170
eISBN:
9780199864355
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195380170.003.0006
Subject:
Psychology, Health Psychology, Clinical Psychology

This chapter reviews research on the effects of partner support on coping with stress. The authors argue that support from the spouse plays a key role in both promoting adaptive coping and ... More


Treating the Disease, the Body, or the Patient

Eric J. Cassell

in The Nature of Suffering and the Goals of Medicine

Published in print:
2004
Published Online:
November 2011
ISBN:
9780195156164
eISBN:
9780199999880
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195156164.003.0008
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine and Older People

This chapter discusses the treatment of the disease, of the body, or of the patient. It first looks at identifying the best treatment and then moves on to the effects of patients on treatments. The ... More


Time, age and the failing body: A long life with disability

Eva Jeppsson Grassman

in Ageing with disability: A lifecourse perspective

Published in print:
2013
Published Online:
January 2014
ISBN:
9781447305224
eISBN:
9781447310907
Item type:
chapter
Publisher:
Policy Press
DOI:
10.1332/policypress/9781447305224.003.0002
Subject:
Sociology, Gerontology and Ageing

This chapter focuses on the long life with disability and the impact of age and time on the shaping of this lifecourse. The discussion builds on results from a prospective study in which a group of ... More


Fatigue in Medical Illness: Research Issues

Russell K. Portenoy and Eduardo Bruera

in Issues in Palliative Care Research

Published in print:
2003
Published Online:
November 2011
ISBN:
9780195130652
eISBN:
9780199999842
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195130652.003.0010
Subject:
Palliative Care, Palliative Medicine Research, Patient Care and End-of-Life Decision Making

Fatigue is a highly prevalent and complex symptom in populations with chronic illness. Although there have been significant advances in the methodologies to measure fatigue, few scientific ... More


It Sometimes Takes Two: Marriage as a Mechanism for Managing Chronic Illness

Mary Ann Parris Stephens, Rachel C. Hemphill, Karen S. Rook, and Melissa M. Franks

in Interpersonal Relationships and Health: Social and Clinical Psychological Mechanisms

Published in print:
2014
Published Online:
August 2014
ISBN:
9780199936632
eISBN:
9780190223250
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780199936632.003.0006
Subject:
Psychology, Social Psychology

This chapter focuses on ways in which spouses of chronically ill patients attempt to regulate (through influence and support) their partners’ adherence to recommended health behaviors, as well as the ... More


Chronic Illness

Kimberly A. McCord

in Teaching the Postsecondary Music Student with Disabilities

Published in print:
2017
Published Online:
January 2017
ISBN:
9780190467760
eISBN:
9780190467807
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780190467760.003.0012
Subject:
Music, History, American

Chronic illnesses include asthma, cancer, Crohn’s disease, cystic fibrosis, diabetes, epilepsy, fibromyalgia, HIV, migraine headaches, and many more. Chronic illnesses can impact the student’s ... More


Nonabandonment: A Central Obligation of Physicians  

Timothy E. Quill

in Caring for Patients at the End of Life: Facing an Uncertain Future Together

Published in print:
2001
Published Online:
November 2011
ISBN:
9780195139402
eISBN:
9780199999859
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195139402.003.0006
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine and Older People

This chapter discusses the nonabandonment obligations of physicians in end-of-life care. It explains that nonabandonment is a concept exemplified in a continuous caring partnership between physician ... More


Emerging Adults Who Have Flourished Through a Physical Health Challenge

Jaehee Yi, Tian Tian, and Jonghee Kim

in Flourishing in Emerging Adulthood: Positive Development During the Third Decade of Life

Published in print:
2017
Published Online:
May 2017
ISBN:
9780190260637
eISBN:
9780190672737
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780190260637.003.0050
Subject:
Psychology, Developmental Psychology

This chapter elucidates the positive developmental outcomes of emerging adults facing physical chronic illness in five areas, using the emerging adulthood theory: (1) exploring identity, (2) being ... More


Spiritual Stages of Dying

Christina M. Puchalski

in A Time for Listening and Caring: Spirituality and the Care of the Chronically Ill and Dying

Published in print:
2006
Published Online:
November 2011
ISBN:
9780195146820
eISBN:
9780199999866
Item type:
chapter
Publisher:
Oxford University Press
DOI:
10.1093/acprof:oso/9780195146820.003.0004
Subject:
Palliative Care, Patient Care and End-of-Life Decision Making, Palliative Medicine and Older People

This chapter discusses some of the ways in which people understand spirituality, what the spiritual stages of dying are, the spiritual issues people face in chronic and serious illness, and practical ... More


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